As most of you know I'm seeing my consultant on Tuesday the 8th with regards to possible non alcoholic PBC or not.
Well in preparation of seeing my consultant I went to the hospital this morning for another of my monthly full blood tests! Well five minutes ago my GP who's a partner of my medical centre called me to say my bloods have doubled since August blood tests which had double since July, he called to ask how I was feeling
Well I explained everything, the out of the blue dizzy spells, legs and arms hurting, mild itchy skin, pains under left rib and in back plus discomfort under right rib, very dry mouth, cold feet and legs and feeling nausea and cannot concentrate on reading a book !!! What's that all about ???
I mentioned that I look well to most but I know I something's not right which he seemed concerned about and truely understood what I was saying and requested I have another full blood test on Monday !!!!! I'm now guessing for sure I won't be discharged until they get to the bottom of it all!
Hi Trish! Hope they soon get to the bottom of what is going on with you. Sending loving and healing thoughts your way!
Joy
Thank you Joy for usual lovely message!
At least I know its not all in my head not feeling brill so I'm happy about that sadly to omit!
GGT and other bloods are the highest ever !!!!
❤
Hi,
Sounds like you won't be getting discharged anytime soon. Hopefully they will get to bottom off it soon. Have they put you on urso?
Take care Angela xx
• in reply to
Hi Angela
Cheers for note!
They've put me on no meds as it's not been fully confirmed I have PBC even though my symptoms have indicated it and previous bloods are looking that way. ! My consultant and nursing specialist think I have early stages of PBC but the more in depth tests have not confirm it as yet. I've had a fibroscan CT and MRI and all fine!
Sorry to hear that Trish and after you had been doing so well too. Hope that it's a temporary setback and that Mondays blood results will see an improvement. You have been packing a lot into your life though, time to slow down a bit maybe ??? Wishing you all the best for Monday Alf.
I know what you mean but I have been trying to slow down a little😁😁. Lol
However my bloods are double to what they were 14 months ago when it all came to light so I guess this is why my lovely GP is on my case ! I must be so lucky to have such a wonderful medical practice and hospital close by with nice staff too !😁
Slow down ....I only did 30 minutes biking on the lowest level possible plus I've been resting my butt for 2 weeks Grrrrr!!!! a further 3 weeks and I'll be committing hari kari and screaming from the rafters....
Hang on hang on! Resting for two weeks - ahem Trishi!! We all know you aren’t able to rest!! Need I say more? No-one is criticising you for having a nice time on holiday but now really IS the time to take time out, surely, until you can see a way forward through these issues. (See I didn’t say issuettes 😁)
I do love everyone of you for being so caring and nicely kicking my butt😊❤
Trishi signing off
• in reply to
Hi
You do need to slow down, just a bit and then a bit more and so on. Love ya. Love and hugs Lynne xxxx
Oh dear me Trish so very sorry to hear you are not feeling well. I am thinking of you and hoping they sort out your bloods soon. Stay strong.. Jaycee
• in reply to
Hi Jaycee
I do try my best to plod on as if there's nothing wrong compared to some on here who I totally respect for there courage and kindness to others when in so much pain or stress or whatever there trying to cope with !
Thanks for your concern Jaycee! Hopefully it will be diagnosed soon !
I dont know how to answer your yellow comment but cheers 😁 x
It must be one of the hardest things waiting for a diagnosis so that you can start treatment to make you feel better.
The view that the PBC heps hold is that you should do as much exercise as you feel able and comfortable to do and that this helps to keep symptoms milder. Only you know if you are overdoing it.
Stress is a big driver of autoimmune disease. Is it possible you have just had a flare-up of the disease strong enough for you to be diagnosed now? Are you beginning to get anxious about your skydive?
It bothers me just to think of you doing it when you have bone and joint pain among other pains. I understand that you want to raise money for charity, but no one would want you to put yourself at risk for it. I'm sure they'd all tell you they rather you keep your busy feet on the ground rather than make yourself ill ?
I hope you get further ahead with blood results on Monday, and that you can relax a bit!
Thanks for lovely concerning message and I do understand were your coming from! I honestly believer I'm not over doing things, but I will admit early today I was perfectly fine then out of the blue I didnt feel so good and had to lye down for an hour! Afterwards I was ok again ! Weird.
The sky dive is scary but I'm determined whatever it takes to follow it through 😁👍
Oh dear Trish, that's sad news. I hope they find a reason for your worsening bloods, but here's hoping your next blood show improvement. As Alf said, maybe you should slow up a bit.........guitar practice is very restful 😁😁😁
Thank you for your kind words and tomorrow I will try my best to rest as per you , Alf , Milo and many others are advising openly and privately for me to do.....
Dear All
You've won ..... I will be screaming from
my shackles tomorrow morning instead of peddling my tiny size 4 feet off at the gym 🤣🤣🤣🤣 joking !!!! I promise to rest someway
So sorry to hear your bloods are more wonky. Did you go to Turkey for your holiday? Or did I imagine that? Does your doctor know that you've been away. Hep A is a problem in countries like Turkey, it might be worth mentioning if the Dr doesn't know you've been away (wherever you went).
Given this has been going on for so long now, and they haven't given a definitive diagnosis, having had a number of tests maybe you should ask for a biopsy, to get to the bottom of it once and for all. You can't be left with this worry the whole time.
I hope things improve and you can get back to your exciting active self.
I did mention to my GP about being away but not that it was Turkey, so I will mention this to my nice consultant Tuesday , so cheers !
Re your biopsy comment ..... you never know that may happen yet if they cannot find the cause ! I must admit my list of questions for the consultant is getting longer and longer 🤣
So sorry to hear that your bloods are worsening, Trish. Great to hear that you have such supportive and caring GP and consultant so you know they are on top of things. It sounds like you are getting plenty of advice on here so I will stick to just wishing you well xx
Hi Pocket - only just seen this - for some reason I do not get alerts anymore of threads that have come in - thought it had been too quiet so logged into it to find new posts. Bummer on your bloods and on having to shorten your gym bunnie sessions - frustrating but necessary for the moment.
Get some more guitar practice in. I will watch out for your update.
Hi again, got this post - seems new ones I am not getting only when I have commented - annoying. Second day resting - so hard when your active as I know myself.
I'm fine too. Always something going on. Like you not doing my weights and bike at the mo but plenty of time. Fingers are crossed for you and your bloods and for you to get some answers. Hope you enjoyed your holiday and chilled somewhat.
Love and hugs back at ya and keep smiling Pocket Rocket xxxx
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Itchy skin could I have liver disease 
I'm new here. Been having upper right abdominal pain and been vomiting every time I eat and drink.
Bilirubin spike 
Had more blood tests and consultation with GP (family doctor), mostly better news I think
GGT and ALT's have increased again 
