So sorry - still worry - about the dia... - British Liver Trust

British Liver Trust

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So sorry - still worry - about the diagnosis - missing fibrosis

Danubian profile image
14 Replies

IVIatthew tells us here and in the FLF forum that CT with contrast and ultrasound did not find the fibrosis.

Also I read in the internet "Noninvasive imaging tests include conventional ultrasonography, CT, and MRI. These tests can detect evidence of cirrhosis and portal hypertension, such as splenomegaly and varices. However, they are not sensitive for moderate or even advanced fibrosis if splenomegaly and varices are absent. Although fibrosis may appear as altered echogenicity on ultrasonography or heterogeneity of signal on CT, these findings are nonspecific and may indicate only liver parenchymal fat."

As some know here, I had MRT with contrast and ultrasound. And also blood tests ALT AST were OK. So, if (ab absurdum) they missed fibrosis in MRT with contrast and ultrasound, would it however show up in my ALT (14) and AST (18)? My gamma GT was OK according to doc, but I don't know what it was. My anxiety has started again and I'm scared - sorry I'm such a pussy!

I'm too scared to get another test (maybe fribroscan) - so I'll live as if I had fibrosis - no alcohol, diet, excercise and all! It is just sleep and nausea which is difficult due to anxiety! PS the Ada Boyana holiday is definately off the books - too much temptation!

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Danubian
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14 Replies

Stay off the internet, find a distraction, like a new hobby ..... a good book ( a novel) to read instead? You need to fill your spare time with something benefi ial to yourself instead of reading scaremongering stuff online. Do as you are doing as in staying off the alcohol, eating healthily and exercising then you won't have anything to worry about or even have time to worry . You can still go on holidays ... thats called having a life ...and probably enjoy them more without alcohol but thats down to you.

Danubian profile image
Danubian in reply to

yeah - thanks so much. Just had a call from the doctor in HH who did the mri and he said there was no fibrosis, and if so, it would only be very early stage. The mri scan with contrast can detect fibrosis. He told me not to google - like everybody else. What a pussy I am - man there are people on here who are suffering much much much worse - whatever made me go so fearful? I lived in some dangerous places in my time and seriously challenged some mighty people and "organisations" without any fear and now? - look at me - a wobbly, bobbly, nobbly lump of yellow jelly. Maybe my fear of God! And I have disappointed you and Milo and in particular Katie and Phoenix. Sorry to all of you!

in reply toDanubian

Isnt that the point of a religions creation tho? To instill the fear of god into people to keep them uniformly in check?

Danubian profile image
Danubian in reply to

well I don't think God has anything to do with religion - sounds strange I know. I have no time for the church. Religion kills belief. I am convinced there are only two places you go to spend eternity. And I doubt and question my salvation.

in reply toDanubian

Hi Danubian

I don’t understand re your comment, disappointing me? Most of us have fears - some rational and some not! I am an awful hypochondriac and offload all my worries on poor freddythelarge by email every day. I am terrible I can tell you. I mean who else but an idiot would spend £350 on a mini ECG machine even though they have been referred for a 24 hour monitor - that’s me, lol 😁

So I agree wholeheartedly with laura as I’m sure you do 👍😁.

Keep up the healthy lifestyle, danu. More 👍👍👍👍👍s

Milo 😁

Danubian profile image
Danubian in reply to

yeah Pilo, we spend the dosh to get some reassurance - for about 48 hours -LOL! Was told by the ultrasound gastro doc that CT and MRT was not necessary. Still went ahead two days later to Kernspinzentrum in Hamburg (HH) - I gave them two 500 € banknotes - it just about covered it. But they are great - you talk to the docs before, and after you wait and doc give you results on the same day - you get given a big bag (like art students) with all the big poster-like photos, a CD and get a detailed diagnoisis letter days after - and you can call the doctors about any questions. I called a day later to ask if there were signs of gastroparesis - possibly causing the nausea. Last week for the CT thorax job they told me not to come with da cash - they trust me. In fact, when I called they said I could come that very same day if I wanted. I think they will make a mint out of me! Yesterday was too much googling and worry and my nausea got worse like on that Easter weekend when I first wrote here. My life is just slowly passing me by, but I'll try to listen to Laura's, Pheonix' and Katie's advice - just go out and enjoy life! Good luck with Freddy the Large - sounds like some London gangland criminal LOL

Danubian profile image
Danubian in reply to

Pilo - Freddy the Large - how much he charge?

alfredthegreat profile image
alfredthegreat in reply toDanubian

Cheap as chips!! :-) :-)

in reply toalfredthegreat

Thank you for answering freddythelarge 👍

Now you’ve been exposed though! I’ll have to think of another nickname for you - shouldn’t be hard hehe!

Miles?

Danubian profile image
Danubian in reply to

Oh no - don't say I've blown his cover. Was he not in the river fish business ;-) ? Shiiaat - I hope he don't come looking for me!

in reply toDanubian

Lol lol lol danu 😁👍

Danubian profile image
Danubian in reply to

Pilo - I hope Freddy the Large ain't gonna divarify my rectus too!

in reply toDanubian

Oh very good! And what a memory - not much wrong there 😁👍

Miles

Danubian profile image
Danubian in reply to

Thanks Pilo - you just saved me from splashing out on a brain scan - assuming they find one LOL.

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