Working

[Vespa27]

Hi does anyone feel that working a stressful job makes us feel worse. I have AIH PBC overlap and lately I feel awful. I do work but I am beginning to feel it a lot. My mercaptopurin no longer controls my condition and I am just waiting for my consultant contacting me regarding my next steps. I am currently under a gastro, but st my appointment last Thursday, he said he needed to speak with the head hepatologist with regards to my difficult conditions....I have no idea what is going to happen. A change of medication was mentioned....but I refuse to take prednisolone because of the side effects, and I get every one....moonface in 58 hours ...well that's not acceptable reaction to any medication in my eyes.

[Hidden]

Hi,

Stress can be a trigger for autoimmune diseases.

I too also refused prednisone for a while due to side affects but became a time that i was so unwell i had no option. Once inflammation was under control i reduced them and remained on azathriapin. Was on 3 courses starting at 40mg a day then reducing. Yes, i put on weight ,got the hump which i hate and very self conscience of it but it helped my liver. My lfts still go up when unwell or stressed but at moment controlled. Unfortunately that doesn't mean our symptoms go away, i still suffer from fatique,nausea,joint/muscle pain, dizziness and others that I'm sure you are aware of. Im back on prednisone for another issue just now but reduced again down to 7.5mg and hoping to get down again.

Its gastro i see but he keeps in contact with specialist in Edinburgh who has advised him over the past 6 years. Im happy with this as saves me having to travel far and still get best treatment. I gave up work over a year ago as i couldn't continue anymore, was self employed and working 12 hour shifts, 7 days a week. I use to get up for work ill and cry, my husband said, no more. I still have good days and bad but have been dealing with other physical problems over past 6 months which has affected my well being. I hope you get medication sorted soon and feel some improvement.

Take care

Angela

[Gerbera01]

Hi there, I think in my world anyway, yes work can feel undoubtedly feel even more stressful when you are battling serious health conditions in your personal life. I have days when I think its too much mentally and physically to deal with, and it's not something you can stand around the water cooler and talk about! Then there are days that I'm grateful to be working and not worrying about my health and living in the moment and happy. Mostly the latter. Personal stress on top of work stress is not a nice pairing, stay focused on the good things in life, the little things that make you happy throughout each day and don't let your health dictate your emotional wellbeing at work or outside of it. Always stop and smell the roses 🌹x