Letter from QE: Good Evening all Phoned... - British Liver Trust

British Liver Trust

38,203 members18,735 posts

Letter from QE

ktan49 profile image
4 Replies

Good Evening all

Phoned GP today to find out b'ham sent them a letter the day after I had appointment (7th Feb)

The letter says "I had a clear liver aetiology screen and a normal FibroScan on two occasions. Also mentions about the endoscopy I had at local hospital (gastro) saying that the grade 1 oesophageal varices on that test could be subject to overinterpretation of oesophageal columns???

Bloods revealed normal liver synthetic function with bilirubin 9, albumin 54, INR 1. ALT 96 with Gamma GT of 186.

Says they have sent off bloods today for urinary organic acid profile and serum amino acid profile and will append these in due course to explore potential OTC.. what's OTC?

Sorry for lengthy post...urgh.. I feel like death! every joint in my body hurts now with increased "brain fog" and worsened headaches.

Another blood test tomorrow from GP for Vitamin D, ESR, Bone & CRP.

Anyone had any specific problems related to raised ALT & GGT? I Don't drink at all.

Also noticed more thin red veins on my wrists and base of my palms...

Written by
ktan49 profile image
ktan49
To view profiles and participate in discussions please or .
Read more about...
4 Replies
AyrshireK profile image
AyrshireK

I wonder if it is this, certainly fits with your ammonia build up issues.

"Medical Definition of Ornithine transcarbamylase (OTC) deficiency. Ornithine transcarbamylase (OTC) deficiency: A rare metabolic disorder, OTC is one of the urea-cycle disorders. The urea cycle is a series of five liver enzymes that help rid the body of ammonia, a toxic breakdown product of protein.

Definition of Ornithine transcarbamylase (OTC) deficiency - MedicineNet"

Hope you soon get some answers to this dilemma.

Katie

ktan49 profile image
ktan49 in reply toAyrshireK

Thanks Katie, you're probably fed up with my posts by now! Thank you ever so much for your informative replies.

AyrshireK profile image
AyrshireK in reply toktan49

Not at all, I just hope you get some medical answers soon.

More information on the condition above at:- ghr.nlm.nih.gov/condition/o... One chapter reads "In some affected individuals, signs and symptoms of ornithine transcarbamylase deficiency may be less severe, and may not appear until later in life. The late-onset form of the disorder occurs in both males and females. People with late-onset ornithine transcarbamylase deficiency may experience episodes of altered mental status, such as delirium, erratic behavior, or a reduced level of consciousness. Headaches, vomiting, aversion to protein foods, and seizures can also occur in this form of the disorder."

Katie x

Hi ktan49,

Sorry to hear you are feeling unwell. The reports seem to be decent though, so I hope that it is good news.

Katie seemed to offer some good information and it gives you questions for your next doctor appointment and something he might not have thought to look into.

Best wishes,

Mary

Not what you're looking for?

You may also like...

Letter from Heptologist

HelloI had a letter from the consultant to say my recent fibroscan results indicates no evidence of...

Fed up

Ok now I’m frightened again 😢, my doctors just called and a blood test I had two weeks ago is not...

AIH?

Hello, Im writing to get some information and reassurance, because I'm a bit scared. 2 weeks ago I...

letter received from gastro

Good morning to you all, I would really value your opinions on the letter I received yesterday...
Sophia1968 profile image

please expert comments...

Dears, In November 2012 I was diagnosed with NASH. At that time, here were signs of fat on the...
new_spring profile image

Moderation team

See all

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.