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British Liver Trust
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Want to share hope

Hi I’m new here but I just want to say healing is possible. I was told I wouldn’t make it without a new liver, had a meld of 38; was hospitalized for 6 months, out of the hospital almost 2 years now just became a certified nutritionist, only on a mild diuretic, and I was on my death bed, really I was. Yes, I’m disciplined with what I eat, no thanks at all to the medical field, I’d still be medicated if it was up to most of them, because that’s what we,re supposed to do. Listen to doctors and become reliant on what they say which is usually keep takin your meds. Well, I did my own thing, acupuncture, excercise, meditation and a non processed vegetarian diet. So I just urge people to eat good foods, like watermelon and beans to get rid of ammonia, don’t eat any meat at all it’s too much work for your liver and creates the backup of ammonia because can’t be digested properly, eat cruciferous veggies which contain sulforophane a super liver detoxifier, meditate, hone in on your manipura(solar plexus) chakra, and stop being scarred! Peace and love to all this holiday season. Two years ago I was told I had 3 months and I’m here, almost 2 years later, about to go for a walk in the freezing cold, why, because I can and that’s how I still look at everyday, thankful to be here enjoying everything because I am.

Jennie

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Thanks Jennie,

If you don’t mind, I’ll stick to the advice from my Liver Team, I am still here thanks to their great work, not forgetting my donor.

Peace be with you too.

Mark

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If my Hubby had followed your suggestions instead of the hepatologist he would be dead now.

Wasn't till removed, liver was found to contain over 10 HCC tumours.

No amount of meditation would have cured that, so glad we stuck with the medics. But good luck to you if you feel your way works for you.

Just hope it doesn't come back and bite you in the ...

Hope others on here who are very ill do not give up their meds and follow your actions. It may not work for others.

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Hi Jennie

It's great you're feeling so much better now but please be careful when making unsubstantiated claims on diet alone curing an illness. Taking or not taking medications proven to work will on most occasions be the difference between life and death. Suggesting "alternative" treatments is irresponsible and downright dangerous. Of course a good diet is essential for a healthy body and mind but once liver disease or any other disease for that matter has reached a certain stage, all the veggies in the world won't save you.

Happy holidays and wishing you continued good health in the future.

Klodian

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I too am glad to hear that things have improved for you. But there is no magic wondercure for liver disease, and to advice people to dismiss the advice from very highly trained people is frightening. And it gives false hope's to many others. There is no wondercure as yet maybe one day. Your story about ammonia and the liver is way off. A healthy liver can cope, and process the ammonia, before passing it onto the kidneys. The ammonia is produced in the gut, and is a by product that is produced when friendly bacteria start to break down food stuffs. It doesn't matter what food this is as by the time it's left the stomach and moved onto the gut it's a mishmash of a lot of different particles, that need to be broken down further.

Good luck, and continued good health. I take it that now your doing your own thing, and now refusing to listen to any medical advice, are you also refusing blood tests and MRi' etc?

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No I get my mrisand blood work. I’m not on bad terms with my doctors or anything, I just did things to my body they didn’t think was possible. My spleen returned to its is normal size I have a meld of 7 since going off meds. I have an mre scheduled because the head of hepatology is so curious and that measures the pliability of your liver, which is very important.

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In this case. may I please ask what was the nature of your liver disease? I am very sceptical as there is no scientific evidence to support your claims. This whole experience needs to be researched further before announcing a wondercure for all ill's. I wish you good luck.

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Hi JenniePersonally I have every confidence in my medical team. My husband and girls were told to say goodbye to me as I wouldn’t make it. Then they found a donor at the 11th hour and I’m still here. No amount of acupuncture or meditation would have brought me back.

I’m glad it worked for you

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Errrm dont you think your recovery is actually down to the medical team and medication administered while you were in hospital for 6 months ?

Yes a healthy life style afterwards is essential but no amount of meditation, acupunture or double sided sticky tape alone will have cured you !

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Excellent the power of meditation can heal . And diet is crucial too 🌸 this is a perfect example of the way one can actually help themselves if a holistic route of sensible practice is followed . 💜

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Sorry doesnt work that way for physical problems. Maybe psychologically!!!

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Each to their own . 😊

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Try before your mindset is fixed in the mainstream !!!!!!

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As you said each to their own.

Not interested

Thankyou

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Please, please no-one should follow this advice unless in full disclosure and cooperation with their medical team. I have seen friends take this route and fail with catastrophic consequences. I am so glad my pessimism is such good protection against quackery. Sorry to sound harsh and I wish you all the luck in the world.

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I have every right and am certainly in the mood to respond to this ludicrous post in a different way than that which I'm about to. I implore anybody who reads this advice to completely ignore it as Caspiana and the others above have said. I suppose one way to look at it could be that once your liver disease has reached the latter stages a 6 month stay in hospital with all the doctors, nurses and all the other connected staff plus the scans and drains and not forgetting the meds,, well it should get you stable enough to return home, eat grass and tune in to Radio Clanger. You will then be able to say definitively that your recovery was down to this unproven claptrap and NOT the unbelievable care you received prior to this. Sorry if this sounds a tad harsh but there are very ill, very desperate people who will clutch at anything for a chance at life and this kind of delusional thinking is very dangerous. I am genuinely very pleased that you've made such a good recovery and your 'carpe diem' attitude is to be commended, indeed I think in a very similar way but for different reasons. Take care.

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I didn’t tell anybody to do what I did, what a great place to share. No not at all. My liver disease was not at the latter stages when I left the hospital. My meld was a 38;

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If it wasn’t at the later stages, how come you were on your death bed?

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No it wouldnt have been, you'd been treated by a highly trained team of medical experts for 6 months, thats why you recovered love !

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So what was the cause of your liver disease ?

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All you are doing is sharing your experience and positivity . You really don’t need people shooting you down just because of their mindset .

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Liver may be healed but seems the problem has manifested itself higher up. What a dangerous unfounded piece of (advice)?? To post

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I agree with Laura!

6 months of medical treatment saved your life.

lifestyle changes are keeping you healthy for now (all part of mainstream advice regarding recovering from serious illnesses).

Complimentary treatment is great in addition to medical treatment but not a replacement.

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I’m not saying they did nothing. I left the hospital w a meld of 38. From there I did follow medications, got parasenthesis at least 1 a week, bloodwork every week. After returning home I got to choose what I ate and gradually my meld went to 34; finally on transplant list but decided in my head I could get myself living a life without a transplant. I have and if I had continued to listen in silence and didn’t go to the top of hepatology unit I would still be on massive amounts of medication. So in under two years I went from death bed to a pretty normal life. I just wanted to share with people it’s possible.

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Utter rubbish.once on transplant list there is no going back!

I personally am beginning to think that you are possibly a sad and lonely person who is posting just to get the attention that you are now being given. Perhaps we shoud now just ignore you as this seems to he one of the longest posts that is really going nowhere. It is no help to any normal thinking person and coul d be bad for any really ill person who is looking for help.

Perhaps we should all just put you to bed now!

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Not quite true Freddie, my hubby was listed July 2014 - delisted May 2015 because his liver and bloods stablized so he became 'too well' for transplant. It does happen, better nutrition, weight gain, muscle regrowth etc.

Obviously he is still on meds to help his liver and various symptoms but is no where near transplant again.

Katie

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Sounds more like a mis diagnosis to me !

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I think you have to do what is right for you personally. I am assuming you probably felt like, what do I have to lose now if they are telling you that you have 3 months. Fortunately, it worked for you. I do think a bland diet helps and calms down the liver if you’re not putting bad stuff inside. I don’t think you were actually suggesting people follow your exact advice, were you? I took it that you were happy and wanted to share your journey so far and what you believe is working for you. I, for one, wish you success and hope you stay well. Please continue to post your progress. I would like to read more good news.

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I never suggested anybody do what I did. Just saying it’s possible

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Oh I know. That’s what I said, I didn’t think you were suggesting that anyone follow in your footsteps. Some other messages were suggesting that but i didn’t think you were. I believe that you were just stating your journey and what has worked so far for you. I wish you well and a long life. I pray for your continued success! I think it’s great. I felt encouraged by your success. Everyone has to do what is right for them.

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Jennie,

I hope that things are still going well with you. Apologies but I feel compelled to add to my previous post. Modern immunology came from the need for skin grafts in WW2, the people whose sacrifice in a just conflict, allow you and those that like your advice, to freely express your opinion. These pioneers allowed things to progress to the ability for organ transplantation, without which, many of us on this forum would not be here.

I do not think that eating watermelon and mung beans, whilst adopting the position of the Himalayan Hummingbird, waving Chakras would have helped any of us.

Again, peace be with you 🙏.

Mark

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Well said mate.

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Thanks, it needed saying.

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Thank god for that, i’d never be able to get in the Himalayan hummingbird position with my knees.

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🤣🤣🤣🤣🤣

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I think the post was spam!

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Think I agree, it’s the 3 likes????

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Even if it is spam, it's good to have a conversation about it. As BSA-3 said above, there are very ill, very desperate people who will clutch at anything for a chance at life. The only instance I'd ever consider anything like this is if traditional medicine has failed me and I'm on end of life palliative care.

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Haha my life’s spam. Dismiss what I said, it was no suggestion, it’s my story, and mine to tell. The only actual suggestion I made was eat healthy. The post didn’t say listen to me. It said healing possible.

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Anyone reading this should be aware of the difference between Anecdotal Evidence and Empirical Evidence.

I know which one I put my trust in.

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Hi Healingspossible,

Good to hear your health is good, Jennie.

There are a great many people who come to this site who also were suffering and told while in the hospital that things weren't looking good for them. My husband went into the hospital with liver and kidney failure. And like many others on this site he walked out of the hospital on his own two feet and is still here thanks to his doctors and the hospital staff.

I think that many of the replies you are seeing are because your post sounds somewhat like an infomercial - all roses and sunbeams and full of excitement. You don't clarify why or for what you were admitted to the hospital or why you were told you only had 3 months to live without a transplant. You didn't say you followed your doctor's orders while you were changing your lifestyle except in a follow-up to one of the replies on here.

In fact you really haven't discussed your "liver disease" at all - the whys and wherefores and yes, you do imply that others can heal themselves as you believe you have by following your lead.

If you had been more moderate and discussed your illness and then gone on and described how you mixed the doctor's advice and meds and procedures along with changing your lifestyle, as some others here have, you might have received more of a welcome.

Good luck for continuing good health.

Mary

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What is your liver disease?

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This forum has a vast number of intelligent ,articulate members. Brought together because of liver disease. You appear to consider yourself something of an expert in this field? 6 months in hospital, just a minor detail it seems. You now are attempting to expect people to consider you an expert,particularly regarding nutrition! What you do is your choice, however advocating people follow your way is just unbelievable. Advocating stopping meds prescribed by a liver specialist is fraudulent at best and could be life threatening for some. Diet is important, eating clean however being veggie is NOT the answer for many! Thankfully members have replied in high numbers, so hopefully newbies are not misled by your utter bilge! On other sites however this could endanger sufferers. There are several accounts on here of people being at death's door. Not one of them considers anything other than getting expert medical intervention for their improvement! people on the list for transplant improving so they are no longer on the list.

Your body, your choice but attempting to influence others in your 'quackery' is abhorrent! Newly qualified Certified Nutritionist V Professor of Liver disease? Hmm, now who do I consider to be most suitable to help and guide me ?

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Perfectly put

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I think she might be confusing her liver compensating as being cured Radnor.

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More likely she has convenient amnesia, six months in hospital is rare. Stopped medication by her own choice? now certified in Nutrition? I could say I am certified in it too. Showing my age,l did o level nutrition and food science, passed with a good grade too. Im sure ther will be a lot of on line courses where certs are issued, 2 weeks today since I started the keto diet,it takes a lot of reading up because for the past 30 years its been 'no fats' I have just fried in goose fat a generous serving of broccoli and cauli. Warmed a slice of roast topside and a small piece of gammon, left over from yesterday. Seasoned with black pepper and sea salt. I am full, I resisted every carb yesterday, no roasties, gravy, yorkshires,no chocolates, pudding or desserts. Obviously no alcohol. I am now eating to live not living to eat. Not all veg are low carb and even more fruits.' some are loaded with fructose, still a carb. This will not cure my cirrhosis, it will reduce some of the fat in my liver eventually. I was advised to do this by a liver Professor. Hopefully no new people saw this and didnt read the replies. A little knowledge is a dangerous thing, as this post illustrates thankfully they are few and far between.

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Yea most people on here with severe liver disease weren't in the hospital for 6 months.

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I agree..people write here and read here for support ,not to preached at. and very dangerous to say things that may not benefit

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Very nice testimonial. I have fatty liver with beginning stages of Fibrosis. I'm scared to death. I have been doing my best to eat healthy. I've had fatty liver for 20+ years. I have lost weight, eating much better, plant based diet. My problem is that I have hemachromatosis and that complicates things as it affects the liver as well. Anyway, your words gave me hope. thank you.

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i too started with just fatty liver. I was told to lose weight. I lost 2 stone by only eating when hungry,having smaller portions and trying to limit the naughty foods. Yr 2 I was told I had severe fibrosis. On the 5th December I was told I have cirrhosis. The prof I saw said you need to cut out carbs , this will eventually reduce some of the fat in your liver. If I had ben told not just to lose weight but how to do this, I could have reversed the fatty liver! Many plants contain a lot of carbs, fruit in particular may seem healthy put will not cause fat reduction . I have researched the Keto diet, when the body has no carbs innput the liver knows that fat will provide energy. Known as ketosis. I was shocked that some food which seemed healthy was full of sugar!!! A small tin of baked beans, tin of heinz to tomato soup, all cereals, breads, pasta, rice are all out. The humble Jacket potatoe? We have been brainwashed to reduce fat, all low fat products are loaded with, yes, carbs! The school of thought that real butter, cheese, full cream milk, fresh cream are bad for us. This whole idea has now been shown to not only be incorrect but that so many oils and spreads we were using are bad for us. A low carb diet was from a Liver Prof. I have NALD.He explained that eventually even though the cirrhosis is incurable, reducing the fat in my liver means he would expect to still see me around in 20 years. If I were you I would be asking about this. i cannot comment on your hemachromatosis, however I believe it can be treated if its diagnosed soon enough. I know this diet does shed weight, I was on Atkins when I was younger, shed 4 stone and was never hungry. My biggest worry was growing feathers and a beak as I ate hot BBQ chicken most days and lots of omelettes. lol It would be brilliant if it sorted your fatty liver.

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Hazel not sure what this professor was thinking when telling you to cut out all carbs from your diet. Sugar, absolutely, you don't need it. You still need carbs and fibre from fruit and veg which is essential for long term health. Sure, the body will use muscle and fat in the absence of carbs which will result in weight loss but will also cause muscle wastage which comes with a host of other issues. There are many vitamins and other macro nutrients you can't get from meat and dairy. Not to mention the environmental and ethical impact of a ketogenic diet. This is from the NHS:

nhs.uk/live-well/healthy-we...

Have a good read through and ask that professor again as it sounds like you either misheard him or he needs to go back to school.

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I am eating green veg which provide an abundance of fibre and minerals and vitamins. I can have raspberries,strawberries or water melon. No limits on fish too providing its naked, no batter or breadcrumbs. Seafood too, again without sauces and other things like oils. Not a cheap diet by any means, a small tin of large chunks of crab is nearly £3 but I had forgot how good it was. I have just ordered some very fine almond flour. Going to have a go making Keto bread. I definitely didnt mis hear him, my daughter heard exactly the same. He didnt use the word Keto, but but I spent hours researching medical sites . Atkins was similar years ago. I can also have nuts, but not in abundance. I find them addictive, so will wait until I am fully disciplined. As well as weight loss this way of eating can naturally lower BP, prevent diabetes and many other benefits. A lot of diabetics already follow this . Im not even pre diabetic but I dont want to be. I have lost some muscle bulk but for years I could not get knee boots to fit me, my calves were highly developed . He is a Liver specialist in a large teaching hospital. I know it sounds weird, we have been told for past 3 decades no animal fats, Flora and fully skimmed milk. This has now been scientifically dissed, real butter is natural and contains good cholesterol. A good number of the low fat foods are loaded with sugars. maintaining a healthy weight is different to losing excess weight aka fat. Fibre in veg cancel out the carbs in veg.sugars, I have started to eat far more than I did before. This diet isnt suitable for people with severe cirrhosis, Then body requires a lot of calories as the liver is causing severe weight loss. I have only just gone into cirrhosis. When all my excess weight is gone I can introduce a few more carbs, but for now I am aiming below 50. sweetcorn is a no no, so are peas but I can even go to Burger King, just swop the bun for lettuce leaves lol. I go back on 23/1 so I will be weighed and discover if this worksI will update then .

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Still havent seen the aeitology of the liver disease posted here anywhere. Why is that being kept a mystery?

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Interesting, my consultant told me about alcohol and the impact on health. I drank wine and soda, large glass, twice amount of water to wine. I sincerely believed that this would keep harm at bay. Her answer, it’s the units that count, the method of delivery is irrelevant. She then added that the medical profession has no idea why some people can consume two bottles of spirits a day long term, with no impact on anything. My units were well above recommended levels but nothing like that.

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