Heading downtown tomorrow to see the hepotologist for a followup ultrasound. No matter how invasive or non invasive a procedure I still get the dread feelings all come back everytime I go for new blood work or scans. Partially of fear things have worsened and partially of fear that the hope things have gotten better will be squashed. We all face this everytime. I'm sure it's the main common stress we all share. I hope to find out my massive spleen has come down again more in size and to see if they can finally pin point the exact cause of it since cirrhosis has yet to be detected. I'm starting to wonder if a precirrhotic sinusoidal response is causing it in my case the alcoholic hep. Unfortunately I will not get to discuss any of the results with her until January. That being said I always try and ask questions that we all seek answers to and as I know not all of us have an equal chance to see a hepotologist and if anyone has any general questions that they are struggling to find answers to that do not involve personal diagnosis I'd be glad to run them by the Dr. when I see her in January.
Ultrasound Followup: Heading downtown... - British Liver Trust
Ultrasound Followup
Christmas is always difficult, everything stops apart from your illness. The trouble with the ultrascan is that they will not discuss the findings with you. I totally understand but try to file the fear away in the mental filing cabinet and keep it locked. Stress is not good for your health. Kind offer, my next clinic is before Xmas, remember cards everyone.
Very true snoutie . Even in quiet moments with nothing on in the house but the lights of the Christmas tree there is still always the proverbial beat of the tell tale liver beneath the floorboards. She will discuss the finding with ke in January but your right the sonographer will not do that. Last time I got really frustrated with the sonographer as she told me I couldn't ask questions about the test yet she kept making comments about what she was seeing. Thank you for the reply I will remember cards!
I think the fact you're so knowledgeable about all things liver doesn't help with your anxiety. Sometimes ignorance truly is bliss. When I was first diagnosed with cirrhosis I had no idea what all the different test results meant. I feel that kept me really positive and optimistic about the whole thing, maybe too optimistic.
Hope everything comes back clear for you 😊
You are truly right KLDN. I have had the hepotologist tell me the exact same thing. Knowing all the variables makes it difficult to see positivity when so much can go wrong. I have often wondered with all the knowledge doctors have and how many different diseases and ailments exist that they dont develop hypochondria over it. I appreciate your response and am trying to remain positive through this past year but sometimes I just hit the ground on it.
That is understandable. I do hope your scan goes ok
I've got colonoscopy on Saturday 😣, didn't know until I got a letter to make an appointment, apparently it's cos I keep getting the runs. As well as ruq pain, I get lower abdominal and lower back pain. My GP said it could still be all to do with my liver. My consultant or nurse will discuss my results with me on Saturday. Sending all my love to you Lynne xxxx
Thank you Lynne I much appreciate that. I hope all goes well for you Saturday. It can all have to do with the liver but it can have to do with other things. Please keep me posted on how it goes.
Sending love back at you xoxo
Thank you so much. Xxxx
Phoenix, one doctor told me that a special form of hypochrodia is common amongst medical students - I can't recall the term (was in German anyway) - it i where they have a small ailment and start linking one thing to the next- and soon the whole body is affected!
Second year syndrome, whereby the student is convinced they've got the illness they're studying. X
Yes I am aware of it. Not sure how that applies to me though. Im not remotely in the slightest stretch a hypochondriac. I ended up on this site because I was diagnosed with liver disease not because I thought I had a disease I was studying? 🤔.
I studied the clinical findings I did in fact have by proof. I did not research things and then adapt them to myself. The resolve was cirrhosis and my spleen is still massively enlarged and currently still under investigation by a heamotologist as now there is a cyst inside of it. These were and are facts.
If I was told tom I didnt have liver disease and that it magically disappeared. Id hop on out of that office and never look back. I dont wish ailments upon myself.
Sorry Phoenix I didn't realise the context, I was reading about it the other day so thought I'd help danubian out with the name, my reply was to him. I know you're not a hypochondriac 🙂. Xxx
I’m waiting for my next ultrasound and I’m going to ask the person, have the organs got bigger or changed shape from last time.
I too am waiting for a ultrasound mines due in 3 days I have autoimmune hepititis and have been having pressure pain round n under left rib for over year keep getting reflux now shoulder pain left arm pain pressure now coming up under bottom of bra line breathless for 15 months . While I'm a positive person I'm beginning to fear the worst I've only been given omperazole now nexium. No other tests. Tell a lie had a fibroscan year ago. Was ok, non drinker non smoker but on steriods n azathriprine, it's fear of the unknown isn't it
I was having an ultrasound , suspected gallstones. I must have dropped lucky as the Dr who did it told me I don't have them. I had not expected this, I had even fessed up to travel insurance I had them, as my middle name is Lucky. I called them back and was £50 better off! I was clueless about fibrosis however and next time I wanted insurance got a massive shock! Progressed now to cirrhosis and like most of us, I am very aware of how serious it is.This site is amazing, in fact if I had found it 2 years ago I could perhaps have halted progression. I also appreciate that there are people on here who are in a lot more dire situation. I,m also fortunate that I am not afraid to ask or query things. This time last week I had no idea I had cirrhosis. I felt extremely pleased that I was seen by the Hep.Prof and it was a clinic dedicated to Liver disease. Sounds like we will all be busy next year, going to appointments. Remaining positive is perhaps the greatest challenge, but doing so makes the journey more bearable. Hope your appointment goes well and you get all the information you need. Hazel
That's a very interesting story Hazel. It's amazing how this disease can go undetected for so long as far as progression is concerned. I am glad that you have found this group and I'm quite greatful for it myself. We are all very classy about how we conduct ourselves on here and everyone seems to have a genuine care for the fellow members surrounding him/her. Given today's behaviour in society I think that is something we can all be proud of! My middle name is Gambit which by definition means to take make an action of high risk to hopefully gain an advantage. We will see how that plays into my situation. Meanwhile I'm trying to hope my first name rings through and I can rise from the ashes and be reborn stronger than ever. That's my positivity for the day lol. Thank you so much and take care Hazel
Sending love xxx
My name is mis- spelt , my typos are infamous . I never wanted to be a secretary so swerved typing at school. Like your name, mine too, Ragnar, is synonymous with fighting battles. The fighting spirit is what we all need, Vikings fought literally but it what keeps people going today. Maybe in my genes ? Having a hidden condition too is confusing , Everyone I see says how well I look lol. Love to you too. x
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