My mum was diagnosed with fatty liver about 4 years ago. 2 years ago it developed into cirrhosis. I can remembered that day so clearly. The doctor looked at her sternly and asked " How much are you drinking a day?" mum looked at me then him and answered " Well I don't know, I have around 6 maybe more cups of tea and some cold drink" He just sat back and looked at me. I knew exactly what he meant and explained to mum that he was on about alcohol. Well mum looked at him ( a lot more sternly than he had at her) and told him straight I don't drink alcohol... she did say some more words but ill spare you them. least to say he got a ear full. My mum at the time was 65 years old, and a strong minded and bodied women. 9 months on, things started to get worse. Every month we would go to the hospital for her to have banding done. This has now stopped, for how long I don't know. 4 months ago the swelling started in her belly and then her legs and feet. I got her a appointment to have a scan and it showed a lot of fluid. They put her on water pills and made an appointment to see her consultant to weeks later. At the time I asked the doctor why was she still on aspirin? and he didn't know but said to stop taking them...
The following 2 weeks were filled with blood test and scans. At the consultant's appointment we were told that she is in liver failure. He changed her water pills and said he would refer her to cambridge. That was in the beginning of march. Since then she has had to go in and have the water drained off. She ended up staying in for 4 days as her potassium levels were near on un readable and her magnesium was low. Its got to the point now that she has had to move in with me and my son so we can take better care off her. She wasn't really looking after herself, not eating properly etc. Shes lost so much weight and muscle weight it's sometimes hard to believe. We have are appointment (after I chased it up) for her assessment. It is frightening how quick she has gone down hill in just 5 months. She dose seem a little better,well to look at, since i moved her in with me. But that's more down to regular meals, exercise and company. she gets really exhausted and is always feeling shattered. Unlike most of you. We have never been told from day 1 at what stage her liver has been or what the blood test really mean. In fact if i'm honest we no beggar all. At anytime we have asked something all we get told is, Its because of your liver or yes you will feel like that..... really helpful.. I do sometimes wonder if its her age that they don't really bother to much on giving all the details. Im probly wrong in saying that, but it is how we feel. But I'm on the ball now (and that's thanks to all of you for the information you all give) and Iv a list of questions for them. We are at the point with mum that i have had to give up my part time job to look after her. And i dont mind cause it means i'm not worrying about her when i'm not home and i get to spend time with her as to be honest i don't know how long we have got.
Im sorry for writing so much. I only meant to do a little post. But it seems it all needed to come out. And other than family i feel lost as to who to turn to.
I thank you all for sharing your stories and helpful answers. You are truly a wonderful bunch of people