Hi I’m back from my trip to Florence and Rome with my wonderful caring husband Spike. I walked up 463 spiral steps to the dome of the cathedral. We couldn’t walk properly for two days but it was worth it.
I was amazed my energy levels were so good, my liver must be working better. I’ll find out in December when my fibroscan is due, fingers crossed.
Nevertheless, I’ve done some bucket list stuff like the coliseum was amazing. Hope I can remember it forever.
Sounds like you had a wonderful time. We've been to Rome....it rained non stop! My husband is desperate to go to Florence but I'm just too exhausted to even think about it. We have cancelled a trip to Bali in April next year as I am worried about the very long flight and poor medical facilities. We're going to do a few short European cities next year when I've started treatment and hopefully feel better. I can't get travel insurance at the moment as I'm still undergoing tests. I've just had a look at your profile 😳 we seem to have a lot in common. I'm 58, type 2 diabetic, have an underactive thyroid, stage 4 cirrhosis with an enlarged spleen with varices, anaemic from bleeding in my small bowel and my hair is falling out too.😵 Would you mind telling me who you used for insurance? Take care. Deb
Hi Debs
Aaagh it’s awful isn’t it...
I dare not travel more than about 1 hour on plane because who knows what might happen. I also dread the takeoff/landing when you can’t go to the loo at all. When
I gotta go I gotta go - sorry toooo much detail.
We went to Florence on a cruise about 3 years ago just when liver probs buiding up and I couldn’t face getting off the ship. And don’t ask me about Rome aaaaaggghh - boy did I get in trouble with wife 😁😬😏
Go get those EU hols quick before the dreaded brexit!
Ditto re insurance - I can’t find one either
Go Debs Go!
Miles
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Hi Miles, we went on a Mediterranean cruise earlier this year. We went on the hop on hop off buses round Barcelona, Lisbon and Monaco. I didn't see any of them as I slept ALL the way round 😴 this was before my cirrhosis diagnosis but I'd been diagnosed with anaemia. I actually saw Honfleur, Gibraltar, and several other cities which I can't remember 😵
Oh dear Debs! All I can say is you’ll have to do them all again when you are better and off the tablets that cause brain fog and memory loss. I’m not sure which ones these are - the consultant keeps saying wait till you’vd stopped taking the tablets. I’m such a wuzz I don’t ask which ones cause the problems!
Sleep is meant to be a wonderful thing and I’m sure it is. Sleep is in the afternoon when I’m in my comfortable chair, Sleep is in the evening when watching TV with wife (boy do I get in trouble when I wake up - so much for sympathy for the ill ones!) Sleep is not in bed when there are so many things gnawing away in my brain.
I was away 6 nights and 5 of them no sleep, it’s so annoying lying there staring at the ceiling
Look on the maggies website.They have a list you can try. Or the British liver trust.
Hi
What is “maggies website, please?
Miles
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Maggie's online is a website for people with cancer. There is a page with insurance companies who specialise in travel insurance for ill people
Thx grannie - I’m very lucky I don’t have cancer but maybe they cover other issues, eg liver probs...
Miles
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Www.maggiescentres.org
Hi Deb I didn’t use insurance just the EHIC card where in Italy you pay a small amount towards the cost. This will probably end with brexit
Great job Julie! Keep those hols coming!
Miles
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Good for you live every day as if it’s your last
Omg Julie that's brilliant 👍 xx
Wow all them steps ....well done you & spike 👏👏👏
Your hol sounds amazing (can I come next time,I'm only little i'll squeeze in your case) lol xx
Take care lovely x
Lisa 😀
Congratulations this is amazing! These achievements really make you realise how well you are.
If your over 50 try Saga for insurance.
Do they take over 60s
😁
Yes they specialise in us oldies!
I declared cirrhosis with varices (no bleeding) high BP and high cholesterol.
Europe was less than £100 for my wife and me for 10 days (62&64) and a Canary Island cruise inc North Africa cost £389 for a week.
Thats brilliant thanks Roy.
I looked at it quicly and I thought it was only for cancer problems....
Miles
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There is a list of companies who say they will cover those with liver conditions on our website at: britishlivertrust.org.uk/li...
Please do always check with your medical team that you are well enough to fly/travel though before embarking on a trip abroad.
Best wishes
hep c
Liver cirrhosis
No Drink
HE - Definitely!!!!
