Hello! My name is Svetlana. I have been sick already for 7 month. It all started in April. I had pain in my upper right abdomen, felt extreme weakness, my hand started to shake. Since that time I started to lose weight, I lost 8 kg over 2 months, hair started to fall, and I felt constant fatigue. My first doctor visit was in April. It was private medical center.
Here in Russia they are wide spreaded. Gastroenterologist diagnosed me with pancreatitis and cholecystitis. She recommended to check my blood for parasites. When I made blood tests it came back positive, they found antiebodies to liver fluke. So I was hospitalized for the first time. In hospital they denied this diagnosed, but I didn't feel better, I continued experience pain in right upper abdomen, felt weakness and tiredness, and intoxicated. I told the doctor about my condition but she ignored me as my blood tests were normal. She also said that I should visit neurologist. I was discharged in 10 days.
A few days had passed. I found myself in another hospital . My relatives called on an ambulance because I was about to loose consciousness and felt intense pain in right upper abdomen. But in this hospital the story repeated. They diagnosed me with cholecystitis. My blood tests were normal. I have already written that I felt intoxicated and in the second hospital I started to have episodes of hepatic encephalopathy. I had episodes of desorientation, my speech was affected from time to time, it became slowed, slurred, monotonous. I also had hand's trembling.
Three months has passed. Two of them I spent lying in my bed, felt intoxicated with moments of hepatic encephalopathy. It was hard to focus, to concentrate, to think, to do simple things. As for hepatic encephalopathy, now it almost gone. But another complication of liver occured.
My liver partially lost its ability to break down and eliminate estrogen and some thyroid hormons. Because of build up of estrogen I feel pain in my pelvis everyday because organ tissues are very sensitive to estrogen(( I am so scared and feel so hopeless. What is waiting for me ahead? Disease like endometriosis, fibrosis or even cancer. Estrogen now is always in high concentration in my blood. ((
That is also true for thyroid hormones. Due to high concentration of it in my blood I often have difficulties breathing.
I want to say that ultrasound and MRI are not always see the true picture of what is going on with your liver. In my case ultrasound revealed fatty liver and one simple cyst, MRI showed 4 liver cyst, elastograthy - fibrosis F1. So no signs of cirrhosis. But in fact I am having liver failure. And I know it progresses very fast.
It's awfull that bloodtests and scans doesn't reflect the severity of my condition((
I have read that in NAFLD it's common to have normal tests and the better method is biopsy. But here in Russia doctors are not going to prescribe me biopsy because of normal blood tests. I am devastated(((