My wife has been diagnosed with third stage liver disease. She has complex medical issues having had pancreatitis in the past, diabetes, brain injury and mental health problems.
In recent months she has had build-ups of fluid in her abdomen and lungs, various infections, inability to keep food down, muscle wasting and weight loss. This has led to several hospital admissions and twice in the last few weeks to her being in intensive care on a ventilator.
She's out of ICU now in a ward being treated for hepatic encephalopathy and completely confused and paranoid.
Her difficulties stem from alcoholism. No blood alcohol on current admission but there has been on most previous admissions.
Hospital attitude seems to be just to manage the crisis and then get her discharged. They haven't spoken to me or her family and are v evasive when we ask to speak to them. We have been told she isn't eligible for transplant until she satisfies a multitude of criteria including 6 months abstinence from alcohol. But there's no follow up and no one in the NHS seems to care. Drink seems to be an excuse for doing nothing.
My wife doesn't have the wherewithal now to know what's going on or ask the right questions or to relay info to me and her family.
We have a young son and I just feel like we are losing my wife gradually but are powerless to do anything about it.
Any advice would be appreciate do. Sorry for such a long post.