Hi everyone, I hope you're all as well as can be.
Just a quick question. Do any of you have Wernicke's? I asked my Cons if the HE was getting worse because I've noticed some strange things recently, and not just what I would class as mild HE but totally different to full-blown HE. She looked at a CT and mumbled something about 'brain', 'atrophy' and 'alcohol'. I thought no more of it but things are getting worse so I asked my GP. She said that it wasn't HE, phew!, and then I said, it's bloody Wernicke's, isn't it? She said yes, but I'm stable at the moment! It all started to make sense. I had a head MRI a while ago which I never knew the reason for, and it would certainly explain why I can't walk and suffer so badly with my feet. I've had all the thiamine treatment and not responded so I'd like to know how fast it progresses, what happens etc. It was first mentioned in 2008 as having begun in my legs and that it'd spread to my brain if I didn't stop drinking immediately. I didn't, I drank vastly greater amounts until my liver failed, so I've only myself to blame, I know that, but why wait until now to give me a dx? Anyway, I digress, I'm not ashamed to admit that I'm scared. My body might be buggered and I have a pathological fear of all things Mental Health, so I'd like to know what I'm looking at. My GP has said that it's not a good prognosis at this stage, so I'd be more than grateful for any info. Thanks in advance. Take care.