British Liver Trust
12,438 members6,112 posts

need help

Im the caregiver of my spouse diagnosed with irreversible stage 4liver disease. Just about died 2x. The last time the H.E got so bad he was issued a Certificate of Incapacity and spent 5months in a care home. Since hes been home almost 5 months he hasnt taken ANY meds except his pain meds. Now his mentality is not good barely can walk , nosebleeds and coughs up blood. He has diahrea and legs and feet are swollen as well has a hard swollen stomach. He has NEVER been jaundiced. Does everyone get jaundice? He wont go to the hospital he wants to die at home. Im curious about the jaundice and rights i have to admit him. ?

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I do not know about the jaundice bit, is he still deemed to lack mental capacity? do you hold a power of attorney that covers medical? (If he lacks mental capacity, you probably can't do it now). If he is not taking his medication, I would get his GP to come over for a chat and look at the options, as his caregiver you have every right to be heard and you may find you can get some further help

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So sorry to hear your story.

No my husband never had jaundice atall. Was transplanted due to cirrhosis caused by Alpha1 Antitrypsin deficiency and many HCC tumours found on explant, but as I said never had juandice.

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