Hi All
My first post on here after reading all your posts. My husband was diagnosed with Cirrhosis following a GI bleed in September. Has been having monthly endoscopic repair of varies. Unfortunately his 'score' for his liver synthetic test is borderline so he now has a referral for transplant assessment. Just wondering what to expect on the 3 days ar Kings?
Any help and advice would be greatly appreciated
Hi Rolawin. Sorry to hear about your husband. I can only speak about addenbrooks assessment which is my hospital but I expect that Kings hospital would be similar. I was given a 3 day timetable as a rough guide. At Addenbrooks they did tests to check lung function chest X-ray ct scan and a heart echo. I also had the chance to meet with the surgeon dietitian and a psychiatrist to chat about how I was feeling mentally.I am sure there are others on here that will be able to add to anything I may have forgotten. Please keep in touch to let us know how your husband gets on
Julia
Hi Julia, thanks so much for the info, I'm waiting for all the bits to come thru from Kings but it's nice to hear from people that have actually been thru it.
I hope yours went as you hoped and wish you well, I will of course let you know what happens, it's all very scary!
Yes it can be very scary but I’ve found that generally the nurses and ward staff are good at putting you at ease. I was lucky to meet and chat to another patient who was going through the assessment at the same time as me so we had each other for support. I really do hope everything goes well for your husband , you have a positive experience and and he gets the result that he wants
Hi Rolawin
Like your husband I have recently completed my transplant assesments at Kings.
I did mine as an out-patient over 2 days staying in accomodation provided by the hospital.
The first day consisted of meeting the transplant co -ordinator and a transplant hepatologist who just talk you through everything.
The tests I underwent on he first day were the Cardio Transthoraic cardiogramm (ultrasound of heart i think), Cardio Pulminary Exercise Test (conducted on exercise bike at Kings), Chest X-Ray, ECG and lots of blood tests.
On the second day I underwent lung function tests ( blowing into tubes mainly) and met the consultant surgeon and consultant anaethetist who just run though things with you and go through your med history. I also met a social worker and saw the dietician.
I had already had CT and MRI scans before my assesment but I guess these may also be part of the process, i'm not sure.
Once completed your husbands case will be discussed at the weekly multi discipline meeting and a decision will be made as to suitability for transplant. You will be informed of the decision by telephone.
If successful he will then need to attend an educational day at the hospital going through the whole proceedure in a lot more detail, these are usually held on a Wednesday I believe and last for 3-4 hours.
Finally you will get an appointment with the transplant surgeons team where your case will be discussed and you give signed consent for the proceedure.
All the staff you will meet are excellent and are so helpful.
All the very best to you both
Paul
Hi Paul, thanks so much for taking the time to reply, it's great to hear what happens in lay mans terms from people that have been thru this.
I'm still a little shocked we have got to this stage. He has been doing so well, he has very little symptoms, the odd sleepless night, a night sweat every now and then. His LFT.s are only just outside the normal range which is a huge improvement on what they were. Honestly, I'm not in denial, he has been very poorly but appears to be functioning normally, I guess this is normal for liver disease and why some don't realise they have it?
I hope you got the outcome you wanted from Kings, it's nice to hear you give the staff such glowing reports, people really do make a difference.
Thank you again
newly diagnosed
Newly diagnosed
Newly Diagnosed
