This is what I just did thanks to you ... - British Liver Trust

British Liver Trust

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This is what I just did thanks to you lot!

Porphyriamaniac profile image
โ€ข39 Replies

My organs are now for the taking when I go even if my liver is not much good! I used to be a little squeamish about organ donation, for instance I didn't like the thought of anyone taking mine or my relatives eyes or heart, strange I know but to me that made them, them...? Since joining this forum i have read so many stories, good and bad outcomes, does not matter. You have inspired me to change my outlook, I've seen and read the immensity of the hope and life that organ donation brings to people's lives! My fiancee feels the same and if the worst were to happen to him or my kids I think I would take comfort from it and I intend to spread the message further. I'm not telling you all for praise, I just wanted you to know that a lot of you have inspired me to do this, so it's credit to you really. Xxxxx

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Porphyriamaniac profile image
Porphyriamaniac
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39 Replies
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LAJ123 profile image
LAJ123

Thank you

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toLAJ123

You are one of my inspiration jim. Xxx

Millie09 profile image
Millie09

Same here Stacie. I signed up last year. .๐Ÿ‘๐Ÿ‘๐Ÿ‘โ˜บxxx i think its a great thing to do

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toMillie09

๐Ÿ‘๐Ÿ‘ right back at you! Xxxx

Millie09 profile image
Millie09โ€ข in reply toPorphyriamaniac

๐Ÿ‘xx xx

Brett11 profile image
Brett11

Iโ€™m an organ donator also here in Australia. Heart valves, skin the lot. Organ donation is not just about the big ones, itโ€™s about anything they can use To prolong someone elseโ€™s life.

Iโ€™m well chuffed about that.

Brett

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toBrett11

I don't know if they'd even have use for my bits and bobs, my bloods no good to them at the minute but hoping that should change soon. โ˜บ

Brett11 profile image
Brett11

In New Zealand a few weeks ago a young bloke died. He had an organ donor card. He was not able to donate anything as he was in a same sex relationship at the time of his death. Such a shame, his organs could have helped so many people live. He was HIV negative and in a committed relationship. Drocanian laws or what. Even though there is marriage equality, we are all thrown into the AIDS basket after we die. So much for equality eh!

Cheers,

Brett

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toBrett11

Hi Brett, yes that is an absolutely shocking waste based on nothing more than stereotyping. How is being in a commited homosexual relationship any different from being in a commited heterosexual one? Interesting article about it here theguardian.com/commentisfr....

There is a 3 month deferral period now for gay men, I believe it used to be 12 months from last sexual encounter, hiv is getting just as prevalent in straight people nowadays, it just seems wrong to me. X

LAJ123 profile image
LAJ123โ€ข in reply toPorphyriamaniac

Stacie,

This might be of interest.

cbsnews.com/news/first-hiv-...

Professor Segev is to be a guest speaker later this year at a British liver transplant conference.

Jim

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toLAJ123

That's really good Jim, it's something I never would have thought possible, makes a lot of sense! And free's up more livers for everyone, brilliant! ๐Ÿ˜ Xxx

Kristian profile image
Kristian

Thanks for posting Stacie. Its always interesting to understand people's reasons for not registering so your post is great. By posting others may see it and think the same.

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toKristian

Hi kristian, I hope so. My reasoning looks a bit silly written down but that was genuinely how I used to think of it. Being on here and and seeing what it means and does for people like yourself has totally changed my reasoning, it's a very important issue. X

Kristian profile image
Kristianโ€ข in reply toPorphyriamaniac

You'll probably find there are many that had similar reasoning. Its just great that yours have now changed.

As a transplant recipient, thank you from the bottom of my heart! It's because of people like you I got a new lease of life. Naturally all my organs are for the taking when the day comes. X

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply to

And it's because of people like you why I signed up ๐Ÿ˜‰ X

Hi

Yes, it's so important. I signed up,some of my organs might be of no use but some could, it would mean so much to me , saving people's lives. Hope everyone VB is as well as can be. Love y and hugs Lynne xxxx

BSA-3 profile image
BSA-3โ€ข in reply to

Hi, Lynne. I rang up to say that I wanted to be a donor, but that I was worried there'd not be much worth using. A lovely lady informed me that it's not just the usual, ie heart, liver etc, but veins, arteries, corneas etc. I signed up there and then.

โ€ข in reply toBSA-3

Well done to you!!

BSA-3 profile image
BSA-3โ€ข in reply to

Thanks.

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply to

Love and hugs to you too Lynne. Xxx

โ€ข in reply toPorphyriamaniac

Thank you so much.

How are you feeling tonight? Xxxx

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply to

Not too bad Lynne thanks, tired but that's nothing new! ๐Ÿ˜ how are you? Xxx

โ€ข in reply toPorphyriamaniac

Feeling a bit rough, thank you. Think I've got a kidney infection, just the way I'm feeling ๐Ÿ™ xxxx

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply to

Kidney infections are awful...i only had one the once, I literally thought I was dying! I hope you're feeling better soon lynne. Xxx

โ€ข in reply toPorphyriamaniac

Hi

Luckily it wasn't a kidney infection, it is my fibromyalgia!! Xxxx

Barnetaccounts profile image
Barnetaccounts

Well done. I am a committed donor, although the thought of donation only really started when I was told that I would need a donation from somebody else. I had an attempted transplant and haemorrhaged really badly and I required 25 pints of blood just to be stabilised enough to be closed up, all my old furniture still in place and taken up to ICU. My family were informed that it was unlikely that I would regain consciousness and would probably pass away within 24-48 hours. As a committed donor my daughter informed the staff in ICU that whatever happened I wanted as much of my useful stuff to be donated, including eyes, skin, heart, obviously not liver, but anything that was usable if it came to it. The reaction of the staff was stunned silence and tears, how could someone think about others while she was looking at her Dad dying. It was simple really we had discussed things as a family at great length and all decided that when we had no further use for our bodies, peoples lives will be changed. The person on dialysis daily, the person who has a sight issue etc etc. I managed to convince many of my friends and acquaintances to sign up, and when someone does it gives me a warm glow inside and a belief in human kind. My experience although not what I was hoping for was 18 months ago so I reckon someoneโ€™s watch wasnโ€™t working properly. Once again WELL DONE.

BSA-3 profile image
BSA-3โ€ข in reply toBarnetaccounts

Fantastic!

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toBarnetaccounts

I'm so sorry your transplant didn't work out. You're right, it's important to have these conversations with family and friends. Your daughter sounds like a kind, brave person, maybe it's being surrounded by such lovely people and your positive, determined attitude in general that has helped you defy them!? Long may you continue to prove them wrong! Xxx

SarahP63 profile image
SarahP63

What a fabulous post. Thank you xx

Chelle_ profile image
Chelle_

Amazing Stacie xx

Mel2637 profile image
Mel2637

When I was a younger I thought maybe the doctors might not do as much for me if I was in bad shape because they could have someone that needed one of my organs. When I got older I realized how silly that sounded and decided to be an organ donor. I am very glad to hear you changed your mind. Whatever I can do to help someone else I am happy to do that. I would advocate organ donation. It could help someone live a lot longer life with the gift you give. May God bless you for your important decision. The gift of life is the most important gift anyone could ever give.

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toMel2637

Hi Mel, yes I've heard somebody mention the same fears about them not doing as much to save people. It goes against everything they swear to do as doctors. I'm glad you changed your mind and I'm glad i changed mine too. All the best , stacie. Xxx

Febeli57 profile image
Febeli57

Thanks what a Coincedence just signed up here in Germany like 5 minutes ago unrelated it's the right thing to do much love from germany

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply toFebeli57

We'll done you! โ˜บsending love back from Yorkshire, England. Xxx

briccolone profile image
briccoloneโ€ข in reply toFebeli57

Bravo Gruss....

It's a fantastic thing to do. Its always good knowing that you are giving someone a chance of life. Take care everyone xxxx

briccolone profile image
briccolone

Good for you- likewise. They can have anything they want from me-except my nose- Iโ€™m quite fond of it and my livers a bit pickled.

Porphyriamaniac profile image
Porphyriamaniacโ€ข in reply tobriccolone

๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ xxx

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