Hi, I’m 5 months post op on Monday and think I’ve got ascites again! I’ve no appetite, severe bloating in my abdomen and the last few days have developed breathlessness. On discharge was able to walk upstairs fine, but am now very breathless by the time I’m at the top. I’m tired, can’t sleep and if I didn’t know better would swear I’ve not had my op. Have emailed Addenbrookes and waiting for a reply. Seeing my GP this afternoon, but wondered if anyone else has had ascites post op. From what I’ve read on google (I know we shouldn’t but........) it’s not a good sign!
Thank you x
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Dawnejoy
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Hopefully either your GP or yourself can get in touch with your transplant co-ordinators today this requires follow up somewhat urgently. It might signal a blockage in the 'plumbing' of your new liver and does need some attention. We've had a few members who have found this after transplant and sometimes it can be rectified with a stent or similar to open up ducts / veins to release the pressure which can cause a resumption of portal hypertension but in worst case scenario might lead to a need for further surgery.
Contact your transplant team, chase them up, don't wait for an email in reply, phone them.
As Katie says, you need to ring your transplant coordinator about this today, or whoever is on call. This is something they will want to know about and will advise you on what to do.
I had ascities about 4 months after transplant I think it's quite a normal occurrence if you suffered with it pre transplant..... You need to go back to a no salt and fresh food diet and exercise it took me about 4-6 weeks to get rid of it they wouldn't give me water tablets or drain it due to having a fully functional liver. Hopefully it will go quickly
Thank you very much for all your replies which are much appreciated as it’s always nice to hear from others in a similar position and it’s only this forum where I can get answers 😊
My GP sent me to my local hospital where I was admitted. Cause of water retention was due to Acute Kidney Injury and this is the second time I’ve had this since being discharged from Addenbrookes. I’m diabetic, suffer from constant nausea and often have runs too, so think I became dehydrated due to this. My local hospital changed my anti rejection meds and stopped my aspirin! , luckily tho my husband had contacted the Liaison nurses and they rung the ward and I was given the meds Boston had stopped! (The reason my family were horrified I wasn’t going to Addenbrookes) .
Anyway home now and back tomorrow for more bloods. In Addenbrookes words, I’m having a difficult recovery but staying positive as believe that’s also paramount to recovery.
Hope you are all doing OK and that those on the list are not waiting too long.
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