Brother approved for retransplantation - British Liver Trust

British Liver Trust

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Brother approved for retransplantation

Edbergius profile image
4 Replies

I have just had the news that my brother has been added to the list for a second liver transplant. His first was due to Budd Chiari, and nearly 2years later he has become very unwell. The doctors haven't pinpointed what is wrong but they believe the donor may have been genetically prone to liver problemss.

He has been listed as a priority case locally due to how quickly the liver has started to fail since symptoms started about 8 weeks ago. It is hard to see him lying in intensive care feeling so sick and unwell. He is currently on dialysis and also treatment for low blood pressure as a result of the liver failure.

We must all now be patient while we wait for a liver to become available. I do feel guilty that essentially someone else will lose their life and another family suffering heartbreak.

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Edbergius profile image
Edbergius
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4 Replies

Good luck to you all, hope your brother is sorted soon.

pear-shaped profile image
pear-shaped

Dear Edbergius,

The ITU units in liver transplant hospitals are highly experienced in organ transplant so will keep your brother as comfortable as possible as well as a very close eye on all his levels. I hope that he gets his transplant soon. It is a terrible thought that someone has to die in order for an organ to be available, but the donor has chosen this - I'm on the donor reg and would want someone to benefit from my organs etc... We still write to my husband's donor families and remind them of the sheer gratitude in our hearts and how everyday is a blessing which their loved one has given to us.

Keep us posted.

Pear

Edbergius profile image
Edbergius in reply to pear-shaped

Dear Pear,

We got the call on Wednesday night that it was expected to go ahead on Thursday.

The surgery went well, as they were concerned about his low blood pressure and the fact it was a re-transplant. His previous transplant took about 11 hours to complete, but this was done in 6 1/2 hours.

He seems to be recovering well and everything is looking positive at the moment. He already feels much better in spite of the operation.

We now have to hope that everything goes right for him moving forward.

I registered as a donor too when he had the first transplant. I don't know why it hadn't even occurred to me before. It is the best gift you could possibly give to somebody.

Were you given the details of the donors families? I think I would too like to contact them in time and know the difference it had made to our lives.

Edbergius

pear-shaped profile image
pear-shaped in reply to Edbergius

Dear Edbergius,

This is wonderful news and I wish your brother a swift recovery.

We send letters/cards through the liver coordinator who sends them on to the families.

We usually wait until spring to send them as New Year and Christmas are very difficult times.

Do keep us updated and take care of yourself.

Yours truly,

Pear

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