What do you think?: This site gives... - British Liver Trust

British Liver Trust

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What do you think?

Brett11 profile image
25 Replies

This site gives loads of sound advice from people who work in the industry or people who have been thru what you are going thru. As always, you should seek professional help also. Sometimes people on here might want just a chat or someone to share a joke with. Sometimes it does get a bit lonely when your suffering with an illness. Should we have an “off topic” board also? Somewhere you can forget about your troubles and just have a chin wag with other people in our situation. It would be very helpful if we could be part of a community of sorts but also give sound advice to people on this part of the forum. Feeling wanted is very good for the healing process also.

Anyway, that’s my 10 cents worth. What do others think?

Cheers,

Brett

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Brett11 profile image
Brett11
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25 Replies
jojokarak profile image
jojokarak

Not sure if your on Facebook but there are a lot of Groups like that I am involved in one and we have regular meet ups if you are in the north west 😁

Brett11 profile image
Brett11 in reply tojojokarak

I’m in the North East of Australia ol

jojokarak profile image
jojokarak in reply toBrett11

Lol you can come in spirit 😁

Kristian profile image
Kristian in reply tojojokarak

either that or we pop over to Australia!

Brett11 profile image
Brett11 in reply toKristian

Come here to Australia!! Let me know when lol. I will pre warn the hospital. They will get more staff in haha

Brett11 profile image
Brett11

Sounds good ! Erm?? Can you lend me a tenner lol

Faithfull profile image
Faithfull

I though same thing as bad as it gets I can't help putting joke in but I hate the thoughts of another site as I'm confused .com .as it is

vulnerable profile image
vulnerable in reply toFaithfull

Me too

Brett11 profile image
Brett11

Same here. It would be nice to get to know others on here without clogging up the main purpose of this site.

O13B profile image
O13B

I think it’s a great idea as it would be an aside to the main site which is important

Chelle_ profile image
Chelle_

There is another site called Liver4life that’s more chatty.....not sure if that helps otherwise as Jo mentioned FB

carllovatt profile image
carllovatt

i can only echo what others have said, it seems there is a facebook page for any ailment you can think of, and ones you can't type in what you have and see what happens ?

Brett11 profile image
Brett11

Thanks for the feedback. I am sometimes on FB but not a really big fan of it. You don’t know what government is reading your posts lol. It would be nice if we could have an area on here to “let our hair down “ even though we are having a hard time with Mr Liver.

LondonBill profile image
LondonBill

Is there a app/phone version of these kinds of forums? Just wondering if the phone can be used for these kinds of long postings? If anyone knows of a good one, please shout it out.

LondonBill profile image
LondonBill

I should have added, that FB and WhatsApp are all terrible regarding data privacy so I was wondering about a proper serious anonymous one...

1football profile image
1football

I think it’s a great idea

Hus

Hi Brett11,

Maybe people could put in their header something that lets others know that they are just looking to chat, or rant, or commiserate, or make jokes, or what ever.

I don't see anything wrong with it, but it might bother some.

Mary

Brett11 profile image
Brett11 in reply to

True Mary but I didn’t want to clog up these posts . Some people might think it’s spam or a troll on here so they might not read important advice on this board.

Faithfull profile image
Faithfull in reply to

Mary that was good one to confusing to many sites I was on hep c foram instead of liver before

in reply toFaithfull

HI Faithfull,

Just want to let you know that you are in my thoughts and I wish you the best.

Mary

Hi Brett11,

I do understand your point and you are probably right.

I'm not the one in our family with liver disease so I may have a different outlook than others. Also, I can enjoy the occasional off topic comments and jokes.

I'll have to keep track of this topic and see how others feel, and if a different "board" is set up I'll have to keep track of it.

Mary

Brett11 profile image
Brett11 in reply to

Cheers Mary. That’s why it would be nice to have an “off topic” board on here so we don’t have to be members of loads of different boards.

Faithfull profile image
Faithfull in reply toBrett11

Yes I know that one as I joined hep c foram thought I was on another hepatic liver site.

This is really true then I joined complex PTSD and another Adult ADHD and arthritis and got so confused I stay only on this as the mixed being not well all over its to much to take in .

Oh forgot the meningoma site ! All the best and more.!

take in

Brett11 profile image
Brett11 in reply toFaithfull

I know that feeling lol

Brett11 profile image
Brett11

There maybe something in the pipeline. Watch this space lol

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