I’ve not posted for a while
My mum is still poorly with an unknown cause to her liver disease
(Docs think it’s to do with autoimmune disease but not exactly sure what caused it)
So she’s been tried on steroids, Tocilizumab and something else (can’t remember)
But nothing has worked
She’s been to Birmingham last year to be assessed for transplant but they wanted to try the Tocilizumab and other stuff first
She’s off to Birmingham again in 2 weeks for outpatient appointment - the local hospital has given up and said they dunno what else to do.
But she is very bad, she’s only 51, has a hernia (belly button) ascites, weighs 47kg, and has very bad back pain currently. A bit confused. Not very talkative. She’s currently in hospital with suspected peritonitis in her stomach. But she hasn’t improved in herself like she always has when she’s having a bit of a bad time but they said that’s gone now...
So was just wondering how UNWELL were you when you had a transplant??
Would they send her home and not see her?
Any other info?
Thanks so much