Follow, follow, follow, follow the yellow brick road....sorry couldn't resist, especially knowing you'll have that suck in your head!
Anyway today we have reached 456 days on the transplant list! I have run half marathons, completed military training, walked 900km in Morocco, but this is the hardest journey I have ever had to go on. I know I am 'ill' some days I feel totally crap and everyday I feel pain, but 8 out of 10 days I'm doing ok....I almost wish I wasn't....I feel like I am lying to people. Its so hard waiting for something that feels like it will never come and then having to explain to people that actually just because I don't sit at home, or complain about what's wrong with me, or take time off work that yes in actual fact what is wrong with me is life threatening and kinda important!
I just feel like some times I am walking my brick road to transplant but some bugger keeps adding more bricks every time I get close to anything, increasing my journey by months!
So there we go I have had my moment, time to move on! I hope you are all ok and winning the battle xx