This has been my 3rd call to Kings. All the staff and transport teams have been wonderful as have the transplant coordinators. Unfortunately as seem often to be the case with DCD donors the liver was not able to be retrieved in time. So I feel a bit all dressed up and no where to go!
I do understand this is the road we are all sharing however it doesn’t make coping with this emotional rollercoaster any easier. I’m basically ok but feeling somewhat emotional at the moment. I’m sure tomorrow all will be fine and it will return to the regular Groundhog Day.
Lots of virtual hugs and positive thoughts to all sharing this journey with me xx
Written by
Peter_Plymouth
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So sorry to hear that Peter. I hope that your next call comes very soon. We are all rooting for you on here and will be looking out for news of your next call and hoping that it's the successful one. All the very best, Alf
Hi Peter, I can only imagine how stressful that is for you. I'm so sorry you've had that disappointment again. However at least you are used to the call and the trip, so those are two things you'll be used too - she says, clutching at straws to try and find a positive!!!
Keeping everything crossed for you. Take care x
PS I'm down in Plymouth tonight getting my assessment done tomorrow and weds!!
Good luck with your assessments - I hope they are all going well. They are very thorough at Derriford and bar a few more blood test there will be no repeat of the tests at King's. I have found them to be a great team at Derriford and very supportive. Hopefully, you will get the outcome you desire however I know you will have to wait at least a week or so after the tests for confirmation.
It really helps sharing and reminds me of those in a more challenging position and those just starting the journey. Hopefully soon you will also be joining us waiting for the right call... xx
My word I know how you feel. Stay strong. At least we are on the list xxx
Groundhog Day is better than no day !! We are racing to our finish line together Peter.
Indeed Jaycee - I do have to remind myself of that and it is wonderful to have the group here to share our joint ups and downs.
Feeling better today - didn't help that I wasn't in bed till 03:00 this morning, however, I'm sure a decent nights sleep tonight and I'll be fit enough to get back to work tomorrow.
Thank you for your kind words and see if we can cross the line together lol xxx
poor you, the waiting game which I will have this year. I bet you jump when the phone rings. All my thoughts are with you and hope you get the liver you need asap, Julie xxx
Yes it does and I find myself going to bed earlier and earlier as it is generally at night they call you I think. So it starts to be a time of anticipation for me. LOL.
Thank Marydel63 I am truly hanging like quite a few on this site, I am sure. Everyday day brings fresh hope. Right up to the point where my head starts feeling sorry for myself and saying they have forgotten all about me. LOL Thank you for your reply it is appreciated. Jaycee
Thank you all for your kind words - they are greatly appreciated and make me realise what a wonderful group of people I have found on here. Feeling much better today and back to work - nice to have routine in your life.
It is dreadfully emotionally draining - it’s strange but each trip is different. I can only speak for myself but it depends on what mood takes you at the start - do you feel this is the one or are you comfortable that it could go either way - this time it felt like it was going to happen so the rollercoaster was much more stressful this time. Hopefully next time I’ll just be a bit more chilled about it and take it as it comes.
I do jump now whenever the phone goes off - just a heartbeat or two - and I have to say that I have given one or two cold caller very short shift after that adrenaline kick lol
Lots of hugs and best wishes to you all for a better life and see you all on the other side xx
Ha ha Peter you sound just like me, I have been a tad unkind to cold callers especially in the evening !!
Yes, you are right about the mood you enter after the phone call.
I think maybe it is normal to think each time maybe this is it, aided and abetted by everyone being so nice at the hospital and all of them wanting it for you.
You know what Peter, it is so emotionally draining, but hey, so is dying I guess.
I know which I prefer.
My grandchildren still need me.
I will keep fighting. You will keep fighting and we share our ups and downs with folks on this site, who are so supportive.
I am sure like me, you find it so uplifting when you read about someone who has been where, we are and has come through the other side.
So we await our rebirth!
With such great hope in our heart.
Stay in touch, and fingers crossed the next one is the right one for you.
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