British Liver Trust
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Morbid Question or Not???

Ok so tomorrow is never promised. Since being dx with Cirrhosis I have been thinking about the future. We have the first wedding of the family, my niece is getting married in July 2018. I have been working on their gift now and want to finish it soon , just incase in 6 months I am ill. It made me think about making /creating something for each of my children to have that They could have should something happen to me. If nothing happens for years that would be great .

Have any of you written or made anything for your kids in the event you die prematurely?

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I dont see it as morbid at all; No one, well or not well knows what the future holds... being unwell focusses us on the reality of our mortality! We really arent going to live forever! So why not make something lovely for each of your kids, regardless of whether or not you feel it may be closer than it used to be?

I like a practical attitude over a head in the sand attitude!

Enjoy the making, make with love, make for pleasure, without the pressure of finishing "in time" and dont beat yourself up if you get unwell and cant finish as you would like. See how it goes!

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Hi you shouldn't plan on checking out so soon! Ive have been diagnosed for 2+ yrs and feel good! Occasionally have pain on my liver side. Have experienced severe itching which seems to has passed for for now! I think I will be around for a good while, at least I hope. I finally got off my butt and started exercising to lose essecive weight which was strongly advised my all my doctors! feeling better! So do what you like; always a good idea to plan ahead especially for your kids and loved ones! Leaving them all something personal is a lovely thought! I truly feel you will be around much longer! Prayers for you and your family none of us know how long we have. Make great loving memories and try not to worry too much! Live life full taking care of yourself, by eating good with some exercise. You / we can be.here maybe 10+ yrs. Prayers!

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Hi I don’t plan on checking out soon!!! I am exercising, eating right, thinking positive. I have a few other medical issues that can complicate things.

So I have decided to make each of my children a box, I will put a letter in in and also a little story about myself things that they wouldn’t know like family history, what I did when I was a child and such. I will give each one their box maybe Christmas 2018 or later. Each box personalized. I do woodworking and carving and wood burning. Oh the itching is just horrific!! Thanks I plan to be here in 10+ years!!!

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As I’m on th list for a liver transplant, I don’t know what the near future holds for me. I have written my Will and have a Power of Attorney document organised incase needed. I feel less pressure on my shoulders after sorting it as I can sleep at night knowing that things will be easy to organise if I deteriorate or pass.

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Thats good, I have an appt to do the same. Can I ask do you have children?

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Your gift boxes are a lovely idea! Love it.

I feel too thats its good to be practical and thoughtful about legacy anyway; being quite unwell gives an opportunity to think about it and maybe not put off those things that can easily be brushed off in the running around of healthy busy lives!

I find that many people are uncomfortable discussing serious illness and tend to say stuff just to fill the uneasy space, and arent able to listen and consider and be genuinely involved. Ive heard people say its morbid to discuss making a will! Erm, no, its just Very Sensible! Lots of luck - stay as well as you can :) 🐾

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I don’t have children. I plan to on the future

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I'm sober 3yrs liver cirrhosis but I need to see liver dr today as my diagnosis keeps changing but I no exactly how your feeling and I thought I put in that I have same feelings .

Yes it does seem like a death sentence it's a feeling of horrendous grief stricken not knowing what to do.

This reply is to let you no that I'm going threw the same thing over and over. U are not alone

Best eishes

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I think with this disease we all subconsciously are waiting for the next symptom which tells us things are changing. Scary though

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