Liver cirrhosis

Hi

Can I know if you notice losing muscle on neck and arm area when you are diagnosed with stage 2 liver disease,does is it mean it's getting decompensated

[jules45]

Hi, there are so many different symptoms when you have cirhossis that each individual has their own different health issues. Perhaps mention it to your doctor or liver specialist when you see him or her, best wishes, Julie

[Hidden in reply to jules45]

Hello jule

Thanks for the reply

It's my dad who was diagnosed..I'm freaking out every day and get so paranoid..

Thanks for your advice

[jules45 in reply to Hidden]

Hi, sorry I couldn't be more specific but I've had some wierd symtomes like painful feet in the morning's, itchy ankles and a unpredictable sleep pattern. I just get told its to be expected and I get on with it. Will be interested to find out what Dr says to your dad.

Best wishes and good luck

Julie

[Pslade]

My hubby has lost a lot of muscle in his arms & neck . He also has acsities. Has itching on his arms and back. His liver cirrhosis isn't from drinking . They said we'll probably never know what caused it. You just gotta take one day at a time.

[jeffnet1967 in reply to Pslade]

i know this so well. at this point , im at stage 4. no one yet can diagnose origin . i dont drink or have any hep. if you looked at me , you coulnt tell anything was wrong. but on paper, im almost in the grave. still remains uncontrolled @ stage 4

[Pslade in reply to jeffnet1967]

Hubbys dr won't tell him how bad he is. They keep saying we're not gonna worry about that. We want to know. I read a lot about it. All husband symptoms are bad.

[jeffnet1967 in reply to Pslade]

i waited for over three years to get them to tell me how bad off i am. none of it is pleasant. they still cant keep my meds in order, which are many. not the gasterologist or primary care dr would tell me , so i found a infectiuos disease dr who did

[Pslade in reply to jeffnet1967]

Husband is on 3 different water pills twice a day. Can't sleep without sleeping pills. Is angry a lot

[jeffnet1967 in reply to Pslade]

nothing yet helps my sleep pattern. angry mayse, but for me its like im agitated at everything. im very short with most people.

[Pslade in reply to jeffnet1967]

That's my husband too. Sleeping pills do help but there not good for liver at all. He quit smoking a year ago and just started again.

[tgk62 in reply to jeffnet1967]

Jeffnet1967 have you been tested for Alpha1 Antitrypsin Deficiency?

[jeffnet1967 in reply to tgk62]

if your asking if i have copd. the answers is yes.

[tgk62 in reply to jeffnet1967]

I was asking if you had been tested for Alpha1 Antitrypsin Deficiency. I have liver issues so my GE did various tests. Alpha1 was one. It might explain your liver issues. Antitrypsin is made in the liver & sent to the lungs to protect them. If you have A1, you don't make enough antitrypsin, or it gets stuck in your liver, leaving your lungs with not enough Antitrypsin to protect them. And it can misfold to get stuck in your liver, causing problems. I have Alpha1, & am having PFT testing in Dec. It might be something to check out.

[tgk62 in reply to tgk62]

I should say...it depends on the genotype you have on whether it gets stuck in your liver. The "Z" allele is the one that misfolds, getting stuck in your liver. I am genotype "IZ". People with the MS, or SS genotypes usually don't develop liver issues.

[jeffnet1967 in reply to tgk62]

Severe A1AT deficiency causes panacinar emphysema or COPD in adult life in many people with the condition

[jeffnet1967 in reply to tgk62]

Severe A1AT deficiency causes panacinar emphysema or COPD in adult life in many people with the condition

[tgk62 in reply to jeffnet1967]

It also can cause liver issues. Anyway just wandered if you had been tested.

[MarilyK1 in reply to jeffnet1967]

Have you been checked out for Hemochromatosis? Two years ago I was told that I have 4th stage cirrhosis caused by Hemochromatosis. The good news (according to a well-known liver specialist) it is the only kind of cirrhosis that can be reversed.

[tommyc in reply to MarilyK1]

Cirrhosis is not reversible, mine was induced by Hemochromatosis.

[Adelou]

My husband lost lots of weight in March when he developed pneumonia & hemathroax & ended up in ICU for 10 days as developed ecoli from his clan turning I to sepsis.

when on the ward the dietitian said he lost a lot of weight because his liver was to longer able to produce proteins & store energy it was using muscle mass for energy. They put him on a high fat high carb diet to help his recovery, pleased to say it has worked, but remember every situation is different

Menti9n it to your consultant/GP

[Hidden]

One thing that might be useful to know is that once your liver shows symptoms of decompensation, it doesn't have to stay decompensated. Medication can help reduce ascites for instance. The hope will be to get the liver back to a compensated state, so don't lose hope. If your dad is feeling fatigued, it might be that he is moving around less and will lose muscle mass anyway. If you are unsure what to look for, then best to ask the consultant for guidance to put your mind at rest or go with your dad on his next visit if at all possible. All the very best

[Hidden in reply to Hidden]

Hi, regarding your Dad's symtoms - I also have loss of muscle in neck and arms due to inefficient storage of energy (Alcoholic Cirrohsis). I would consider asking for a referral to a Dietician as they help measure muscle loss and suggest good liver healthy meals high in carbs and proteins to prevent muscle being lost to produce energy. I was near death just about a year ago with Decompensated Liver and the subsequent Ascites, Oedema, mild Varices, Insomnia, fatigue etc, as with End Stage Liver Disease. Pleased to say thanks to the team at my GP surgery, local hospital and Q E Hospital Birmingham I am doing a lot better, compensated (on meds)with muscle wastage now my top priority to pay serious attention to. Best wishes.

[Hidden in reply to Hidden]

It's good to know that even with all these horrendous symptoms, you have, with the help of the professionals returned to a compensated state. Good luck with everything in the future

[Hidden in reply to Hidden]

Thanks, hope all works out ok for you too. Just keep chipping away at it all.

[GrannyDoll61]

My husband has lost a lot of muscle too. He finds it hard to eat before going to bed and first thing in the morning but these are the important times