Understanding my posts

[Faithfull]

I need to let you all no that I have trouble writing thing and keeping to the things I'm ment to write and it's hard for me to understand me own posts ,please bare with me as its so hard with ADHD keeping on track as I got a lot of illnesses going on but thanks if anyone thinks I'm being off or writing something wrong I'm sorry .

[LAJ123]

Faithful,

No need to worry.

Nobody here is going to judge you or anybody else by spelling or grammar.

This is a support group and that's what happens. You will find advice, support and understanding.

The group is monitored by the British Liver Trust and that ensures that people keep to treating each other with respect. You can rest assured that you are completely accepted as part of this group regardless of how you express yourself.

Jim

[Hidden in reply to LAJ123]

Well said Jim!

Faithful, you are very welcome here, and hopefully you will find it a supportive place to visit,

Warm wishes,

BLT

[Faithfull in reply to Hidden]

Thanks a lot please can you let Me no how to get social worker or someone who knows about why mentally I'm not coping as they wont help me in my area

[Hidden in reply to Faithfull]

Faithfull,

If you speak with your GP and discuss your concerns and problems they will be able to refer you on to a social worker, if appropriate.

Best wishes,

BLT

[Faithfull in reply to Hidden]

I done everything and it's not just the physical disabilitys but both me and daughter mental health I been on to all I feel I ain't a clue but this area really bad hospitals no healthcare nothing leaving us two in bad situation it's getting me so down I got to many problems .

[Faithfull in reply to Hidden]

I swear to god there is no one social services ,rethink,mind,neflt,habit,gp,advocate , gp, women's aid ,crisis line ,shelter,mp,ombisiman, housing,voiceability,various other ones and that for me health mentally physical they ref me back to GP .sorry I'm mentally drained living in area with no help I'm in hell they say go a/e to tell you best be in crisis and be prepared enough to look after yourself as can't get out anymore on me own I've give up asking crisis lines my area nothing.

[Hidden in reply to Faithfull]

Faithfull,

We are sorry to read that you are not recieving the help you need.

Your GP has a duty of care to help and refer you on to other specific services.

If you feel that is not happening, then you could phone NHS England who deal with complaints about primary care services (GPs) their number is 0300 311 22 33

Best wishes,

BLT

[Faithfull in reply to Hidden]

Thankyou

[Faithfull in reply to Hidden]

I must tell you this with me ADHD I thought your name was BLT in me head bacon lettuce and tomatoe I have just realised it ain't sorry it's true and hope you understand and laugh about it .

[Hidden in reply to Faithfull]

That made us all laugh Faithfull!

[Faithfull in reply to Hidden]

Please please can you tell me what's best time to call liver trust as I can never get threw and I no that your all understand that I got a lot going on and I don't no what I'm even talking about or who to thanks a lot.

[Hidden in reply to Faithfull]

Hi,

We apologise that you have not been able to get through on the helpline. It is open Monday to Friday 10-3pm. There is only one person advising and it can get very busy.

The best time to try is probably around 11am.

Best wishes,

BLT

[Faithfull in reply to Hidden]

Thankyou i got day patient on Thursday camera done me mouth to stomach and you have to have someone take u home and stay with you as u no why .Safety but I ain't got no one daughter I'll as liver and diabetic and mental health is bad as they all no shall I ask if I can stay for couple hits after as I did not no it was nessacary thanks.

[Hidden in reply to Faithfull]

Hi Faithfull,

We would suggest that you ring up the endoscopy unit and speak to the nurse in charge and let them know that you have no one at home with you, they will be best placed to advise you.

Best wishes,

BLT

[Faithfull in reply to Hidden]

Thankyou good news meningoma in head still same size ,dr was lovely made him laugh when I said take your mask off .

But just like last yr they sent me to wrong dr I should have been transferred to neurosurgeon last yr but good news .

Calling the hospital and thanks for advise .

[Faithfull in reply to Hidden]

Ment hours not hits that sounded bit rough!

[Faithfull in reply to Hidden]

U don't have to apologise ..thankyou for reply . I wanted to make you laugh and ask for fries with the BLT I'm just trying to calm me ADHD down 53yrs Young and if i can make someone laugh then my days good. Thanks all of you for being a lifeline .

[buggsy2017 in reply to Faithfull]

Faithfull that is fab, and im sure your not the first to think that x

[Faithfull in reply to LAJ123]

Thankyou I am very grateful

[vulnerable in reply to LAJ123]

Well said Jim x

[Miche49uk]

I second what Jim said and Ive always understood what you mean. Don't worry xxx

[Faithfull in reply to Miche49uk]

Thanks a lot your reply made me laugh as I read it quick and I thought it ment Jim knows what you mean ,thanks for reply I understand what you wrote it's me looking at replays like a maniac ,hope u ok

[Miche49uk in reply to Faithfull]

I'm ok thanks Faithfull hope you are too! Xx

[19581979]

Hi faithful

It is always lovely to hear from you. It can be hard sometimes getting services to understand how difficult life is for you.

Just remember to tell yourself you are a lovely person.

Gx

[Faithfull in reply to 19581979]

How u getting along good I hope I got social worker God knows when to assessment just had mental health one but they said social worker you was so helpful and 2morra I have done this but at the end of divorce thank god .

[Miche49uk in reply to Faithfull]

I have a meeting at our local CMHT for assessment in an hours time, I've been there before, once, briefly and it was all blamed on stress.. by a psychiatrist twiddling his watch who asked no questions about my past... I hope and for once pray that they tell me why I have these episodes of self destruction, fear, isolation, low self esteem, low self worth, anxiety that comes from nowhere, flashbacks... sometimes we need answers and all that has ever been blamed my end is alcohol even though I had years I didn't drink, months, weeks... ta like swimming in treacle trying to get mental health services support. Luckily a lady I'm seeing is coming too which is just as well as I'm certain to forget every word I say as usual... diazepam has been dished out since before 2009.. this country, from a mental health perspective, is a glorified pill factory. I don't even like alcohol and never did.

It's nice to have someone supporting me.

We all need support and I'm glad and hope you get the right support Faithfull xx

[Faithfull in reply to Miche49uk]

I totally understand you as all u put is me I forget and get no where then I get told you need to have therapy by talking then I get a knock back as I'm on 40mg a day Valium well they put me on it and it's like don't ask do ask get no where .anyway I hope your ok as u can be .

[Miche49uk in reply to Faithfull]

Morning Faithful,

I know that a couple of years ago when I paid to see someone to try and sort a trauma out she told me not to take diazepam before seeing her. I think it works on the same part of the brain as alcohol so dulls or sedates our senses so that could be why but as you rightly say, they put you on it, don't stop taking it abruptly as that will cause problems as I'm sure you know.

As for me, at 49, finally they listened, went off and got a psychiatrist, have upped the sertraline I've been on for a month to 100mg and my diagnosis is C-PTSD (complex PTSD). The lady that came with me was great because she mentioned things I forgot. There are some things we cannot just process and put behind us sometimes.

He has recommended EMDR too and we will go from there, he had bothered to check my blood results from hospital and look up medical history, including Hepatitis from January before changing medications.

I cried but that was part relief that I no longer have to wonder why I acted certain ways sometimes that seemed alien to me. I have hope! My search for a definitive answer is over. Once you know what an ailment is it's a darn sight easier to work with in my humble opinion.

Never stop pushing, we all have a right not to suffer mentally or physically.

Take good care,

Michelle xx

[Faithfull in reply to Miche49uk]

Thanks for reply I'm desperate to get any help 10yrs been on them. I have complex PTSD and ADHD I feel like is anything gonna not be ill on me !i had to laugh at me self then as I wanna brighten someone's day . I be OK as ever hope your ok and glad you got support gives me hope thanks

[Miche49uk in reply to Faithfull]

It's crazy that they haven't sorted some therapies out for you Faithfull. Spending our lives taking damn pills that just dull things down is no solution long term although I know C-PTSD can't be cured, like most things you can get help to treat the causes.

I appreciate medication is appropriate sometimes but there are enough therapies out there too that can help these days.

I truly hope they sit up and listen and address your needs Faithfull, keep us posted, you have done so well and are doing so.

Michelle xxx

[Faithfull in reply to Miche49uk]

2yrs being pushed out completely because there is no criteria I come under as of comorbidities mentally physicaly drained I no is sounds stupid but my life is hospital home nothing else I don't think that two mentally and physically ill my daughter the other onetime in never ending .we have not got resources.I think that it's in humane ,as they no we live also in fear in our house as of harassment . It's hard but I'm still trying.

[Miche49uk in reply to Faithfull]

You are doing really well Faithfull, hold on to the good things however small, it's all important and so are you!

Michelle xxx

[Faithfull in reply to Miche49uk]

Thankyou for your kind words xx

[Faithfull in reply to Miche49uk]

Still on case of getting help well 40mg Valium a day .and I on Ritalin ADHD .yes they are crazy I told them it's alright for them they can walk away I have to take me every where there's no break yes there is breakdown to dispair I sick going over the same shit same no to complicated back to GP it's a circle of nothing.

[19581979 in reply to Faithfull]

Well done getting a social worker. Ask them if you can have a copy of the assessment form to look at before they do the assessment. It will give you a chance to think about what they will ask you.

Is there an advocacy service that might be able to help you?

I'm doing ok. Tired very quickly and that is partly due to me trying to cut down my pain relief.

Take care

Gx

[Faithfull in reply to 19581979]

Thanks rethink mental health sent me a leaflet to help God bless you and me stopping pain patch sending me off me into another detox but I see it threw life is good but also very cruel I really hope you don't feel to much pain as if it's not one thing it's another God bless you .

[19581979 in reply to Faithfull]

I hope everything goes well and that rethink and social services can help.

Don't worry about the pain for me, as long as it isn't too much it helps me to walk. If I had the pain relief that stops the pain I lose the messages from my brain that help me to walk a little.

Take care

Gx

[vulnerable]

I know the confusion is so annoying I am the same. Don't apologise xx

[Hidden in reply to vulnerable]

Well said Jim. We all support each other on here and never judge anyone. Please take care. Lots of love Lynne xxxx

[Faithfull in reply to Hidden]

How u been as I was thinking of you .

[Faithfull in reply to vulnerable]

I feel just like your name vulnerable .

[Hidden in reply to Faithfull]

Please take care. Lots if love Lynne xxxx

[Hidden in reply to Faithfull]

Sorry for late reply , I've not been too good at all , thank you. I've been up with pain and then struggled into work, my boss is very good, though. How are you feeling? Xxxx