Hi I was Diagnosed 7 years ago with AIH, and have been on and off steroids since then. I have recently ben told my disease has progressed to Cirrhosis and have had a biopsy to establish how much. I have always suffered severe headaches, but they are getting more frequent and lasting longer. During these spells, I am disorientated, cannot communicate and am often nauseaus/sick. I am worried as together with my increased liver damage that things are not gong well. I have an appointment in Nov to see consultant and am currently on 20mgpred plus Azathioprine 100mg. I use pain relief, ice packs, tiger balm, to relieve th pain, but sleep is the only real solution and the last one yesterday meant I slept for 24 hours, in between trying to relieve the pain.
Does anyone else experience these regular headaches and have you got a better remedy for recovery please?