Itching with liver disease.

[Gringo8675]

I've been having a pricking feeling that goes away with rubbing. Occasionally a classic itch, Primarily on arms, legs, and face. It always gets worse at night. Is this what the itch feels like for those of you with confirmed liver disease? I haven't found anything that actually describes what the feeling is like.

[jojokarak]

For me it was intense itching and it was constantly and I had to have constant showers or something cold to ease it. So it doesn't sound like the same it sounds more like prickly heat to me, but I would go to your gp to get checked out 😉

[Gringo8675 in reply to jojokarak]

This has gone on for a couple of weeks now and I have no rash anywhere so I don't think that's it.

[Bevmc]

I have PBC and my itch feels like something is crawling on me, I itch pretty much everywhere and mine is worse in the evening.

It's worth getting it checked out

Good luck

[Gringo8675 in reply to Bevmc]

I feel that too. It's mostly that prickly feeling but sometimes it feels like a small insect is crawling on my skin, not itching but just that light tingle. I'm perplexed as my LFT's came back within range, Billirubin was at 1.5 but not sure if that's enough to produce symptoms.

[Hidden in reply to Gringo8675]

Hi

My Dr put me on fexofenadine which has really helped. Please take care, lots of love Lynne xxxx

[LuckyLady999 in reply to Bevmc]

Hi Bev. I was like that before my transplant. It used to drive me mad. Aloe Veta cream really helped as did taking naltrexone.

[ImmyR]

My daughter's itching was unbearable. Questran has really helped.

[Faithfull]

Yes I get the same my gp gave me a cream it's really good you can also wash in it its called ZERODOUBLE it's in a tube it may not be good. For you but it's worth a try as the itch drives me insane

[Gringo8675 in reply to Faithfull]

Is that how your "itch" felt? At the moment I'm having a lot of pins and needles/burning sensations. But also a light feel that something is crawling on my skin.

[Faithfull in reply to Gringo8675]

Yes I get same when I get out bath where I'm drying me skin looks burn or scratched for an hour

[Gringo8675]

I appreciate all of the responses that you all have taken the time to write. But the purpose of my post was to ask what does the itch feel like for you?

[LuckyLady999 in reply to Gringo8675]

Like something crawling on the skin.

[Geodunson58]

My husband said that his itch just felt like a common itch. He didn't have dry skin or rash, but he would itch on one arm and he would scratch it, then it might move to his back, or his face, or leg. He said it was more inside out than outside. He had his transplant 6 weeks ago and no itch since.

[Winnie73]

Hi there, your post really struck a chord with me. I also have the itching you describe. Been going on for about a year now. I have a history of heavy drinking. I've had numerous blood tests done. All normal. Also a CT scan and ultrasound both normal. Wondered if you were any further forward finding out about the itching. It's driving me crazy not knowing what's causing it. Docs insist it's not my liver but I can't shake the feeling it is. Hope you are doing well.

Kind regards

Win.

[Gringo8675]

Winnie,

I'm sorry I haven't been on here in a long time. As I posted before, about three months ago I got a fibroscan showing 7.2 kPA which is borderline F2 fibrosis. Unfortunately I relapsed the last couple of months and drank more than before...during this time I did itch occasionally along with severe bloating, increased spider veins, and nausea/vomiting.

I just got another fibroscan done this morning after a week sober and it showed 5.1 kPA which is mild or absent fibrosis. Not sure how that happened, maybe my liver healed a bit in the month I took off or maybe I did the last one too soon after stopping(2 days) either way I see it as good news. I now know I can't have just one or two drinks as that will risk a relapse of weeks/months of hard drinking. I hope the fibroscan is as accurate as advertised but regardless know that the only solution is to stop drinking completely.

Best,

Gringo

[Winnie73 in reply to Gringo8675]

Thanks for your reply gringo. Only just seen it sorry! That's great news about your fibroscan. Has the itching gone now you've stopped drinking then?

[LuckyLady999]

I had PBC diagnosed when I was 30 and That is the type of itching I had for nearly 30 years. It was awful and always disturbed my sleep. Night time was always a nightmare. I had a night in hospital trialing Naltrexone and it really helped with the itch. I am 4 months post tx and the itching has completely gone. Using Aloe Vera cream also helped.

[missunites]

when i was first diagnosed the itching was particularly bad on my back, I had to get some back scratchers, one upstairs, one downstairs and one in handbag. Its not too bad now but my lower arms itch and when i see where I been scratching its like bruising where the blood as come to the surface.