I've been missing as I've been in severe agony and have lost a lot of weight as I had stopped eating. Finally after an endoscopy I was diagnosed with bile reflux. I was negative for h.pylori so I'm not sure if the previous gastro doctor just put that in for the sake of it. I've lost trust in doctor's and I don't feel like seeing anyone anymore.
I've seen two gastro doctors and both them have said the bile reflux doesn't cause pain. They've just dismissed my pain but only one of them has said I may need nasal gastric feeds due to weight loss.
I've read a lot about bile reflux and joined a few groups and it is amazing how our pain level sounds the same but how little the doctors know about this condition.
I have stopped going out and socialising because I can't eat and have no energy. As soon as food touches my stomach I'm on severe agony for hours....it's on par with labour pain.
Currently I'm lying down in pain and wish things would end. Apparently bile reflux majority of the time occurs due to removal of gall bladder.
I'm just feeling a bit lost and seriously feel like I've just totally lost my life. I've had 6/7 weeks of being bedridden due to pain. My mum had to take over the care of my children and I've had to stay with her for the whole of summer.
I'm back to my house due to school and far away from family so I'm a little stuck. Just literally had some really horrific bland food and down with pain!
I wish there was an end to this but it feels like I'll be living like this forever!