Hep c diagnosis

[Tracey2436]

Hi I was diagnosed with hep c after been hospitalised due to blood tests showed deranged liver function ... it's now been about 10 weeks I've had numerous bloods done since n scope but still no meds to cure the hep I was wondering if anyone else is in the same position ....

[Meisha]

Hello

Have you been told what Hep c you have there are different types from 1 to 6

I was diagnosed with 3a I recieved a six month treatment of peg interferon at my local hospital after which was diagnosed undetectable in my blood however a month later it was back

I asked my doctor for referral to Kings College Hospital in london which is a teaching hospital and have excellent trials program. And are one of the leading hospitals for Hep c

I was lucky to get onto the trials program and was put into a new trial drug from America after the first two weeks my viral load had dropped from 250000 to250 and in three months I was completely cured and still am almost a year later. So there is a cure out there so do not be disheartened.the drug I was given was from a company called Merck. Also for me this drug had no nasty side effects

Best move I ever made ask your doctor about this hopefully you may be able to get in this or other new drugs they are trialing

[Bermuda1]

Yes you need to know your genotype . As some meds are more effective in certain genotypes than others.I do t know if there is a long queue for meds or what restrictions here are presently . Some countries have generic ones which work equally as well . There is a lot of global inequality about provision of these drugs. I would demand answers from your Dr. About genotype and when they intend to give you the drugs in order that you can reach SVR.

[maureen_1950]

Hi there. Sorry to hear about your diagnosis. I waited a few years after my diagnosis, just had to go for blood tests and scans every 6 months. Then, last year I was given the go ahead for treatment. Had a 12 week course of the meds, which really knocked me sideways with side effects, making me feel so ill all the time, but they worked and after the 3 months I got the all clear from Hep C. Hope you get treatment soon. Best wishes to you.

[Tracey2436 in reply to maureen_1950]

Hi Maureen thanks for your reply did the hep cause any damage to your liver ? Was it your idea to wait for treatment or on drs orders ? Cheers

[maureen_1950 in reply to Tracey2436]

Unfortunately I was left with cirrhosis which has led to small tumours on my liver. I'm attending hospital next month for another go of TACE treatment. xx

[Tracey2436 in reply to maureen_1950]

Good luck with your treatment Maureen .... it puts mine in perspective xx I don't know wat genotype mines is .... I'm keeping a list of questions to ask consultant as I'm very forgetful just now one minute it's there next I've forgotten Wat I was doing /saying/thinking x

[maureen_1950 in reply to Tracey2436]

I had to wait for my consultant to put me on the course of meds. He was waiting for a new set of drugs to be released which were an improvement on previous. Then we had to wait for NICE to sanction them. So got there eventually. xx

[Tracey2436]

Maureen do you live in the U.K. ..? I've heard that the cure now fer hep c is a lot less invasive than previous meds ? X

[maureen_1950]

So sorry for delay in my reply. Yes, I live in the north of England. The best thing about the meds I had was that they were just a 12 week course as I understand previous drugs took much longer x