Haemochromatosis

[Martin1888]

Hi, had appointment with specialist and been told that a could possibly have haemochromatosis a inherited condition which iron levels build up over time, this was supposedly making my liver look abnormal. Treatment will be giving blood to get rid of excessive iron. Has anyone else got this condition? Told it was quite common. Thanks

[Hidden]

Dear Martin 1888

the Haemochromatosis Society is a great resource for information and support:

haemochromatosis.org.uk

email: [e-mail]

Advice line: 03030 401102

there is also information free to download on our website: britishlivertrust.org.uk/li...

I know there are others on here with Haemochromatosis so am sure you'll get some peer support messages soon

Good luck and best wishes

Andrew

[stuart68]

Hi Martin

My mother and mother in law have both got it , I was tested few years back and told I didn't have it , now been told I may have it. My brother has it as does my daughter. She just gives blood donations which sorts it. Easily controlled in most

[Bermuda1]

If you use Facebook , there are some good groups. One called The Rusty Kettle, purely for people with HH, or possibly with it .

[mherbie]

Hi, when my lfts came back showing high levels of ferretin my gp tested for haemachomatosis. The genetic laboratory results took about 4 weeks to come back and the results show me as a carrier. One of my sisters is also a carrier. The other hasn't tested... 2 of my 3 grownup children are clear.. The 3rd still to test! The haemachomatosis society has very good information.. Sorry this dinosaur doesn't know how to send a link!

I had never heard of it and my mother was never diagnosed though in hindsight she had this symptoms.

[Hidden]

Having the genetic disorder can lead to a number of common conditions ranging from fatigue to liver cancer and as a consequence, is often undiagnosed. It affects about in in 200 of people of northern European heritage. The society website is a good source of information but I have some reservations about some of the Facebook pages associated with it.

Mike