I see messages and to be honest, I can't answer them all, or keep up.
I've had some pretty bad episodes lately..out of it for 48 hours 12 days ago. Then yesterday.
My art really keeps them at bay, or did.but I'm getting ill again.
Sorry to make folks worry..
As you know I'm on the Tx list again for another liver and a kidney.
My daughter, who is turning 22 this month is coming or two weeks at end of August and first week of September. prayer to it,as I miss her so terribly. I want to help with her dowry chest, As it's unlikely I'll be able to fly back to the U.S. for when she gets married,or may not even survive.
We're taking her to Glastonbury, to the same place we went laste year, and I loved it so much..but first we will do London and then a few days with my best Tx pal..we were together for over three weeks and remain close, and she has a daughter close in age..so will will take them to Glastonbury also?That way, if I am out of it for a couple of days she and Celina can pal around.I have a Selena. Also..lol
We got beautiful new bed two days ago..it was very stressful, even though it's stunning. The stress brings on the HE, hepatic enchalopothy, which is far worse than the massive ascites I had prior to my first Transplant. 18 months ago.
This is crazy and scary, waking up, not knowing what day it is or what I've done.
Anyway, that's my update and. A photo of my latest shadow box
The Victorian Gazebo Boc
Best,
Your American Pickle,
Kimberly
Written by
dckimberly
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That is lovely work! I am gad it takes your mind off all this scary stuff. Iam in Tx and ai am trying to figure out what the meds are like if and when I go through with a Liver transplant? Is it that rough? Since I don't have family its even more scary I don't have anyone to help with through the process. If my body rejects I guess we know right away? I send prayers to you enjoy your daughters visit how nice to have her.
Hang in there I hope you go to the wedding or see it via live video technology puts us in front row!
The fact that you posted at 6am says a lot about how things are going for you.
There's nothing wrong with taking a back seat now and then, silently watching is fine, we don't always have the energy to extend our caring to others when your own needs are so great.
I first went to Glastonbury in the early 70's when living in Bristol. Maybe its all in the mind, but there is definitely something spiritual and uplifting about the place. Hope being there will give you the boost you need right now.
When you don't have the strength, you can still plan your next project / art work. The peace and reflection you can get from art, your own or from others will always sustain your spirit.
In the meantime, enjoy the time with your daughter and take great care of yourself. Know that you don't have to be contributing here all the time, your presence and influence remains at all times.
I love the shadow box. How beautiful. Kimberly I am sorry for what you are going through. I really hope that call will come very very soon. Also I hope you will have a lovely time with you daughter and of course your friends.
I'm just about ticking along. I don't know. Sometimes I want to give up! But hey ho ticking along xxx
So sorry to hear you are going through a bad time, sending you all good wishes, Yes I'm sure you are looking so forward to spending time with your dear daughter and friends,
And as for your Art it is so beautiful, you are a very cleaver lady to say the least. Sending a big hug and all the very best.
Hiya kimberley I am really hoping you get your call asap you have supported and been a great help to me on many occasions, especially concerning the H.E... If you need anything, anytime hunni I here and you just sit in background and have a nosey lol just let us know your about xxx I ended up taking the mickey out of the amount of times I had H.E as laughter is one of greater assets especially when it comes to mentality xx
You gave me so much strength when my husband was given so many bleak prognosis. You must keep your med team in the loop and make sure they prioritise you. You were the one who filled me with inspiration and positive attitude - asking the right questions and knowing what to do.
You must keep going to A and E - every time you feel ill or have an episode. Every record of you being ill will be added to your Tx plan and will make sure the list is aware of how serious you are.
Your plans sound perfect! I know you will be fine and enjoy the wedding from wherever you are.
Here's sending you huge hugs and I will be praying for you endlessly.
I know it's very hard - but do try and keep us updated when you can.
Hi love..to be honest, tony takes such good care of me during these epidsodes..better than nurses sometimes..right before Christmas I was getting reassessed and I had an episode and the nurse screwed it up so bad at Addenbrookes, tony had to yell at her, explaining how to get me to take my meds. And my consultant told him, unless I'm in a coma just let me ride it out. The problem is him missing work..he has an important job and we're lucky that he works from home a lot, but he's in fraud at Santender, a manager. He works sometimes middle of night, so he gets some leeway, but he can't keep missing work. My nurse practioner is trying to get social servesis involved, so they can sit with me when he has to work, but of course, they are dragging there feet..it's funny, every other healthcare thing here has been incredible but not this. And he is getting closer to retirement but we cannot afford for him to lose his job. So..sorry to complain, I am so greatful to the NHS..they saved my life. Quite literally, but this part is frustrating. Sighs.
That's why I don't go in every time, they told him not to bring me, plus it would be dangerous..me in a car with him having HE. I've already pulled out my pic line once..god knows what else I might do! Lol
What they need is for it to be documented - so even if Tony writes it down - creates some sort of log and then have the transplant coordinators enter it onto your notes would be really important. Every episode/frequency of episodes does determine how ill you are - unless they know - they can't add it - so you are still in the same place (list wise) as you were before.
I am so sorry Hun that you are going through so much and wish with all my heart that you get that phone call soon...
Hi Kimberley, it's so so nice to hear from you. Your painting is stunning. I only pop in here myself when I feel up to it. I have never been to Glastonbury it must be fab ! It's not very far from where I live to drive there , you make sure you have as much fun as you can ☺. Regards to the wedding im sure it will be perfect where ever you may be .sending you big ((( hugs )) and prayers of strength your way 🌹xx
Dear Kimberley, To the kindest most comprehensive supportive lovely person that you are...Your wisdom was enormously important as I battled the grief and still do, but what you said was so true and I Thank You from the bottom of my heart.
i took up art and i can honestly say that it is now my companion and reason for living and carrying on, like you said every day a tiny change....not only that it makes me think of you as you said about your art.
Your work is impressive.
Congratulations for your daughters happiness! It's going to be so lovely to be together soon!
Always in my thoughts sweet lady, (may you get the Tx as soon as possible) You're such a fighter and survivor When you have health restored I think you should write your autobiography or some kind of book as you have such a wonderful way with words and you draw people to you through your personnality that shines through American Pickle! xxxxx
Hugs you..thanks for the,no words..your such a dear..I remember how sad you were. Are..so glad to see you still about..blessings, kimberly
How are you now DC Kimberly? Hi love, sorry to hear you've been so unwell. I've been the same!!! My son said I was standing in the kitchen staring into space lol. My balance has been off but apparently I was non responsive. Anyways, I woke up in the hospital not remembering too much, with my son sitting next to me hooked up to everything. I was suffering from high blood sugar, severe low platelets and BP off the charts. I don't think I had even gave myself an injection or ate much that day. Regardless thanks to my sons quick response they got it all taken care of. I normally give myself 3 injections of Humulog insulin before each meal and the long acting Lantus insulin at night. I have always been thin but after doing some hep-c clinical trials it caused a strain on my pancreas. I eat well drink lots of water but was stressed out with the itching problem. It's hard for me to wear any clothing without wearing it inside out!! I can't stand the seams touching my skin this is due to the Hep-C apparently. Nevertheless, I broke my metatarsal and I'm in agony and my doctor refused to give me any pain medication So I normally get a morphine drip at the hospital. i'm still in pain still recovering from my foot problem because I also have osteo-arthritis, lesions that don't heal that need steroid injections, I suffer from myoclonus with jerking motions. It keeps me up during the night terrible muscle cramps. I could go on and on and on and I'm sure you understand what I'm going through but I'm fed up! I did however receive my compensation package from the provincial government in Canada like it's going to do me any good I can't enjoy nothing because of the pain an incessant itching. It's driving me up and around the bend!!! I hope you feel better love, I haven't really bothered to talk to anybody due to my anxiety. One good news my daughter had a baby boy last week and he is beautiful. She was in labour for almost 2 days so I feel for her, but she wanted a baby and that's what you have to go through; the pain even with the epidural, which I never got with my kids, because I'm always afraid of needles in my back, LOL. If there are spelling errors it's because I'm legally blind and my adaptive devices are not working too well and I don't have my computer back yet. I apologize. All in all I'm praying for you and chanting!!! sending you some lovely white light To heal you. By the way I look to your art work through my CT magnifying camera lense and when I could see it was amazing do you sell your artwork? Because I'd love to buy that one in particular. for now all I can say is be positive and try and ride it through!!!!❤️🦋🙏🏻❣🇨🇦
Hi there....yes, theysay our higher functions disappear..we're like zombies..you poor love. I'm still on slow release morphine everyday..the pain in my lower back unbearable!
And yes, I do see me art..I could make one larger for you to be able to see!
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Just a few jokes to keep morale up, sorry admin, off topic.
Hi, haven’t been here much but
Been reading for 6 months...
I am feeling scared.(sorry dont know where to post)
