Clinical trial: Hi, I've recently been... - British Liver Trust

British Liver Trust

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Clinical trial

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Hi, I've recently been diagnosed with stage 3 liver disease from a fibroscan, my consultant said i need liver biopsy to confirm the extent of the disease. I have been offered to go onto the regenerate clinical trial to see if this helps. Trouble is there are 3 groups 1 which will be given a placebo and the trial lasts for 6 years. Has anyone else been asked to go onto this trial and if so how have people found it? Thanks in advance xx

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6 Replies
Veeyares profile image
Veeyares

Yes I agree with your consultant.MRI and liver function test may also be required

cramlingtonlad profile image
cramlingtonlad

I've been on the trial for just over one month and there has been no side effects from my medication however I don't know if I've got the placebo or not

in reply tocramlingtonlad

Hi thanks for the reply, glad you got no side effects. That's the trouble not knowing what your taking although from what I've read up they do keep a close eye on you which is good. Did you have the liver biopsy, if so what was the recovery like! Just thinking about work as I've already had 3 months off this year for a hysterectomy xx

cramlingtonlad profile image
cramlingtonlad in reply to

Hi, yes i had the liver biopsy, second one I've had and apart from the pain in the shoulder for a few hours and a bit of abdominal discomfort it wasn't too bad. I was back to normal after a few days and it was well worth it as the results of the biopsy showed what my liver was actually like in terms of progression

dadofeight profile image
dadofeight in reply tocramlingtonlad

In the same boat - just had it this morning - liver capsul pain and up neck dire - was a bit panicked as the doc said she was using a larger guage needle!!

Anyway that's it over and done with - still laying down.

Now the wait for results :(

annew272 profile image
annew272

Ive just had a liver biopsy as my last one was a year ago and to go on the trial you have to have had one in the last 6 months, im hoping it will show some improvement from grade 3/4 liver disease. Both times I was back at work the next day, although had to take it a bit easier than Anne. wont be staring the pills for a couple of weeks

Anne

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