bilirubin level of 34: hi i have a... - British Liver Trust

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bilirubin level of 34

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hi

i have a bilirubin level of 34, i have just had another blood test and await the results,

is 34 med or high.

thanks.

29 Replies
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Wow most of us on liver group only dreamed of having bilirubin levels like that. You don't have nothing to worry about

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in reply to jojokarak

Thanks jojokarak

I think that technically anything under 20 is normal and therefore anything over 20 is abnormal. You will find that some here have 10 times your level. My own bilirubin level 10 years after a TX for PSC varies between the mid 30's to low 50's. Your doctor will advise and may want to establish if there is a trend. Bilirubin is an important indicator of liver health but there are more important blood factors.

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in reply to PeterP54

Thanks Peter

My bloods are all normal just the Bilirubin level, I am waiting for Retest results then i will speak to my doctor.

thanks again.

Mupik
Mupik
in reply to PeterP54

I’m only 16 and my bilirubin levels reached over 40, my doctor mentioned Gilbert’s syndrome when I was 13/14, I’m really worried, I eat normally (big appetite, I actually eat more than my 21 year old brother and I physically can’t gain any weight 54kg), not much fatty foods, cut down many sweets and almost no snacks, no fizzy or sugary drinks, take tablets like omega 3, vitamin c, vitamin D, chlorella, spirulina, etc everyday, I have normal urine and feces colours but my eyes aren’t as white as they used to be and my friends mention how yellow I am, is there any medication to lower bilirubin levels? I really hope that I will be able to eat normally and will revert to my normal skin tone otherwise I can’t live like this.

AyrshireK
AyrshireK
in reply to Mupik

I know you say doctor 'mentioned' Gilbert's Syndrome in the past but did they actually confirm a diagnosis. There is information about GS on the British Liver Trust page at:- britishlivertrust.org.uk/li... I don't know whether it'll help at all. Have they looked at any other potential issues with your liver?

A return to doctors seems necessary to get some additional checks done.

I can also tell that having this potential issue is causing you some anxiety. If it would help to share your worries with other young people who are also experiencing liver issues then at 16 years old (indeed up to the age of 24) you can access support through the Children's Liver Disease Foundation - they have online support and more. You can reach them at:- childliverdisease.org/

Hope you get some help.

Katie

Mine is usually around 34, and in the absence of any other disfunction in my liver, I have been diagnosed with Gilbert's Syndrome - which although thought to be benign by most doctors ......it does have an effect. As I understand it I am missing a certain enzyme and as a result I'm at higher risk of toxicity from drugs like paracetamol and if I drink just a bit of alcohol it makes me quite ill. I don't know if it's why I have multiple chemical sensitivities?

When I had a gastroscopy the nurse said she'd have to give me less of the sedative as I would likely react more to it having Gilbert's and I find that I get a greater reaction to codeine than other people I know.

My eyes are usually slightly yellow around the edges but apart from that it's not very troublesome if I take care with what toxins I'm ingesting!

Might be worth asking your doc if it's Gilbert's - there is a starvation test you can do to 'prove' diagnosis but my docs don't think it necessary as I always have raised bilirubin every time I get a blood test.

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in reply to Zara-LouiseD

Hi Zara-LouiseD

Thanks for all your information and i will ask my doctor about Gilberts-syndrome

I am waiting for retest results to come in and then i will talk to my Doctor, With your information i have a better understanding.

Best wishes

Pauela

Although not ultra high, it is high in the medical sense and definitely not normal and needs investigating.

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in reply to RodeoJoe

Thanks for your reply, i will make a further appointment with my doctor.

34 is only just above normal, mine peaked at 570 a few weeks ago and I was totally yellow

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in reply to markdago1

Thanks for your reply i have a lot to go to catch you up.

thanks again.

Katieamy2
Katieamy2
in reply to markdago1

Mine has peaked at 320 but today is 288 look like homer simpson and itch like hell wish I was 34

Bevlou
Bevlou
in reply to Katieamy2

My nephew has 377 and is in icu after 2 liver transplants in 3 days and very poorly , can this be sorted

Trust1
Trust1Administrator

Hi Pauela,

It would be advisable to speak to your doctor about interpreting your blood test results.

Differences in normal range for different laboratories can make it difficult to compare or comment on individual test results specifically. This is due to the different brand of tests that are used and how these are interpreted.

Your own doctor will be able to correctly interpret your results and plan accordingly,

Best wishes,

Rebecca

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in reply to Trust1

Thanks Rebecca i will.

Pauela

Hi I’ve just had my results showing my bilirubin level at 20. Is this acceptable or high? The nurse didn’t really explain much about it or why it was this figured.

Hi cuteporter10,

I believe 20 would be fairly normal. You definitely don't have anything to worry about.

I was diagnosed with Gilbert's syndrome at age 16 (even though I would probably have had it since birth and had jaundice since primary school) which means I have a high level of bilirubin. I am 18 now and my count is usually at 42, but when I get sick it increases. Yesterday, I was very unwell and it rose to 83. I will be seeing a GP in a week to check if it goes down again once I'm better.

Gilbert's syndrome usually doesn't cause any complications whatsoever. Some people don't experience any symptoms and I'm sure many people live their whole life without even knowing they have it because it is usually discovered by accident. Usually the only symptom is jaundice and that is what I have.

My eyes are always yellow (people ask if I have hepatitis, I don't), but when I am not looking after myself properly, they go even more yellow so all I have to do is look in the mirror to see if I need to change something I'm doing. For example, make my diet healthier, do more exercise, limit my alcohol consumption, drink more fluids, sleep more, etc. I take vitamins everyday because without them my eyes are an obvious yellow. (My mum likes that she can check how well I'm looking after myself by how yellow my eyes are.)

Hope this helped!

silkylawyer

Thank you for taking the time to reply and reassure me. I was concerned as my doctor told me it was a bit high compared to my previous results and because it had never been brought up before. I have had a recent viral infection ( hence the reason for my blood tests) do I suppose that could have elevated my count as it did yours. I'm eating lots of fruit and fibre now so hopefully my next blood tests in two months will show an improvement. Thanks again for explaining it to me and hope everything goes well for you.

Not within."normal" range but your clinicians will be keeping an eyes on the numbers. Pre my transplant, a year ago, my bilirubin levels were around 50. I now, for the past 8 months, have settled at 8.

I have bilirubin 34 and alt 67 and ast 75 i am wooried i think i will die

Hello Bilalrazakhan, whilst your levels are elevated it is only slightly. Why do you think your liver will cause you to die? Have you got a diagnosis of liver disease or symptoms. If you tell us more then we might be able to offer support or guidance.

Katie

But why bilirubin is increasing other are normal like ast alt and normal bilirubin is upto 1.2 but mine is 34 really worried

I have no infection

Only a doctor can explain this or look into it further for you. Bilirubin can rise for all sorts of reasons. You will perhaps needs scans and extra tests to discover if perhaps you have a blockage, a gall bladder problem or issue with bile ducts in the liver. None of us are qualified and even if we were we couldn't make a diagnosis based on the little information given. Your doctor who has all your results is the best person to ask.

Katie

I should get a ultrasound to see the problem

An ultrasound might help but doctors would be the best people to advise. I am assuming you are not in the UK.

Katie

Yes pakistan and doctor made it worse then gone to tibb called hakeem in pakistan

Hi, I’m a little worried at the moment and find it helps to talk... my Bilirubin level is 21, ALT is 52 and AST 26? I am having a repeat blood test on Wednesday to see if any change? Do you think that is high?

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