Currently in Leeds

I have been in hospital now more than a month and was transferred to Leeds St James, last Friday. It has been a very emotional day, first time it's happened but I was informed by a doctor early morning that a liver was available but my blood's needed checking first, as reason I was transferred was because my sodium levels were low and potassium was high. Anyway every emotion possible I went through until I was told this afternoon liver was given to someone who was basically on deaths door, but looks like now I am in Leeds until I have the transplant. What a waiting game it is but has took me long enough to get her, and my body had to take a huge nose dive to get here!!!!

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  • Hello sweet, what a rollercoaster of emotions for you !. Oh bless. Your turn will come. Hope you have a good support team (family/friends ) around. Well, not now at 1am obviously...the blighters will have all merrily gone home and left you fretting ! Best wishes to you. anne x x x

  • I have had a lot of support today thank God they are as drained as I am lol

  • xHopefully you can get some kip, threaten to sing God Save The Queen loudly and out of tune on a loop unless they help you sleep. Actually, I did try that one night after 3 nights of not sleeping, all it got me was frog marched by head nurse to her station and told to behave or else! X X x

  • Haha. I like your style

  • Don,t know about you but I haven't had a winks sleep in 4 days ! they don,t want me to take anything for it, so a new plan maybe required. Sleep deprivation is illegal under the Geneva convention, and considered to be torture under international law. So, will see how the liver nurse likes that one then !. (she loves me ). Hope you got some rest darling. Fingers crossed, we shall see what today brings. Yours anne x x x

  • I eventually persuaded them to give me some Zopiclone and it worked a treat. No good long term but brilliant for a couple of days. Only way I got any sleep in hospital.

  • We are all pulling for you. Keep the faith.

  • Thinking of you jojo - hope all goes well for you x

  • hope your ok hunny. I felt so far away from home when i was in there. At least your in good hands and we will keep you company. Fingers crossed xxx

  • I never slept in 14 days i was in there either. Sleep deprivation is awful xx

  • ๐Ÿ’‹

  • All I think of is a saying is when I was a salesman the china mans smile got bigger on every knockback a the odds for good news improves

    You are my thoughts and prayers that your good news comes soon

    David

  • Hi jojo ask for an eye mask and ear plugs I presume your in a room on your own so make it as dark as possible and switch the phone off. You might get a couple of hours kip all the very best to you xxx hope it happens quickxxx

  • Hi there. Good luck and I hope you get a liver soon. I went in Leeds and they also kept me in till a liver came in as the 1st wadnt good enough, the 2nd I wasn't good enough and, yes, 3rd time lucky one came along. They didn't give up on me and I am still here now 3 years on. Stay strong and stay positive and have trust in the Drs they will get you sorted. Thinking of you xxxx

  • Hope one comes soon for you keep your chin up and take care xx

  • how did you get sick, you do not have to answer you can always message me. I feel for your situation. It is incredibly sad that one has to wait until they are sick enough based on MELD score. I will follow your progress. I had hep-c and continued to drink as I had a very stressful job. I cleared before it did total damage. I am now in recovery mode from drink took a retirement option moved to the country side and am doing well with the support of my family and AA. You sound like a fighter, have heart JoJo.

    sincerely - FisherKing1

  • Hi Jojokarak, I do hope you managed some sleep last night and you have plenty of visitors today. Thinking of you and hoping they find a replacement liver for you very soon. x

  • so so soooo sorry dearest!

    I know how hard this must be!

    I am thinking good things and lighting a candle for you! I hope your bloods

    go up soon, and you get your new organ!

    hugs and kisses!

    cheering you on, as ever!!!

    XXX

    Kimberly

  • Dear Hun,

    You have come this far... Stay strong and try to keep as nourished as you can - food and sleep... You will need all the energy you can save...

    I am praying your turn comes soon.

    Yours truly,

    Pear

  • Hi, thinking of you and wishing you well ๐Ÿ˜Š X

  • Chin up......Your turn will come.xx

  • I really hope today has been a better day for you. I had a false call on Easter Sunday. Got to Leeds from Bolton and just as we pulled up i got the call to say turn back and go home. The liver was no good. I was devastated then i got my new liver 20th April this year. I don't think you will be waiting long. It's difficult I know but at least you know it's your turn soon. Keep watching this post for updates. Some great people on that ward. Xx

  • all good wishes are sent your way darling. i pray your turn comes soon and that all goes well for you. keep your chin up. love grace xoxo ๐Ÿ™โค๏ธ

  • Good Luck and God Bless you as you wait.

  • The best wished for you Jojo! Hope you won't have to wait too long. Inmy๐Ÿ™๐ŸปXx

  • Hi Jo jo -followed your progress on the st James Facebook group and know how poorly you have been for a long time. This seems to be it now -you will soon be receiving a new liver and will be a post tranplant group member soon and giving advice to all us pre-tranplant people. Coming up to Leeds this morning as my husband is signing hopefully on the dotted line to join the list. You seema very positive person and are nearly at the finishing line ๐Ÿ˜€

  • Thanks so much Katherine it has been a long road but I knew I would get here eventually. I have to be positive as I think there is always someone worse off than you, I make the most of the good days and also make written plans for what I want to do when I get better. I hope your husband receives the news he is after today I will keep my fingers crossed x

  • Hi jojo,

    I don't know how mobile you are in hospital at moment but when your visitors arrive, ask nurses if you can put on a jumper and plot up outside with a coffee or juice and get yourself some natural daylight and fresh air. It's sunny in Suffolk today. The fresh air might help clear your head from the artificial ward lighting and lack of fresh air - just a thought.

    In on waiting list but fortunate enough to be at home so I really feel for you honey especially with lack of sleep too and the waiting.......

    Like everyone on here, we are ALL thinking of you, and keeping everything crossed that your new liver isn't too long a wait.

    Stay strong my lovely and keep us updated when you can. We are all here to listen to you rant, moan, air your frustrations and most importantly, to support you.

    ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ Positive thoughts hun ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ๐Ÿ’ช๐Ÿผ

    Nicki ๐Ÿ’ž

  • after my transplant my visitors were allowed to take me off the ward for an hour. It was fantastic. I was sick of seeing 4 walls. I loved just looking in the shops. Hopefully ur keeping well xx

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