I think I'm just looking for people who will understand my situation. I have AIH and PBC which I was told is not genetic or hereditary. When my sister started displaying similar symptoms to mine I urged her to see doc.
After blood tests they made app to see consultant,this took 5 weeks to come. Her ALT was 1100 and bilirubin 75,doc seemed unconcerned !!
Four weeks later she collapsed at home,BP was 49 over 26 !!!!
She was rushed to hospital where she stayed for 2 weeks,had ultrasound,MRI and CT scan but no biopsy as INR was 3.9 and they were worried about bleeding,they gave her no meds and bilirubin went up to 235 !!!
She is now at the QE in Birmingham in the super critical list for a transplant and we were told she wouldnt last the weekend,but she is holding on.
I can't help thinking that if they had started her on steroids as they did with me this could have been avoided,she still has no diagnosis.
Can anyone offer any advice ? Sorry for the long post but her family are all devastated,her only visitor allowed is her husband
Thanks for reading this xx