I need to vent! When I was diagnosed a month or so ago I did not shed 1 tear. A couple of days ago I broke down mentally. PBC has warn me down I feel as those I have been robbed of my life as I know it. I am Stage 3 Fibrosis with bridging. I itch, nausea, pain, headaches..everything. I just couldnt get through the day. I am 50 years old and raising 4 kids from 17 to 13.. I am tired and exhausted. I have lung Bronchiectasis/ MAC... Everything causes fatigue. I feel helpless, and hopeless...it's the why me story. I did everything right and still all this sickness. I wake up to pain, and go to bed with pain. I can't think of anything outside my realm.. Im stupid to what is going on around me. Its seems there is no enough time to worry about other things besides the only things on my mind for the day of fatigue. Its is quite sad that we suffer so much and have to be in liver failure to transplant. I would rather get it now and feel better now and not later. I am on urso but my specialist told right from the rip not to get my hopes up. He really did not think it would do much good. Not sure why he would say that when others are doing so well with the meds. My biopsy said Chronic Hep... PBC with bridging and fibrosis. All I know is I am sick and its hopeless how do you cope with so much and still pretend to be happy?
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