4th call...

[pear-shaped]

We were called in for a possible transplant... Following a long winded wait (as most of you are familiar with) we were told that the liver was not suitable.

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[AyrshireK]

Keep your chins up, hopefully, your real call will come before too long.

Katie xx

[pear-shaped in reply to AyrshireK]

I think the recent tumour diagnosis has brought on a new anxiety... The emotional rollercoaster along with ample helpings of what ifs leaves you feeling drained... It is the thought that they make decisions on the condition of a liver and do not want to give you a poorly one...

A 12 hour run leaves you in a bit of a state...

[AyrshireK in reply to pear-shaped]

I can imagine, obviously your hubby's condition has become more of a priority. We are only just starting our wait (listed 3 July this year) in the grand scheme of things and we get the "what if" thoughts all the time. I can imagine that the 12 hours after the call are a bit of a nightmare but its no good getting a less than decent liver. So many folks are obviously walking about with substandard livers and they just don't know it. I hope your next call and the proper one comes very soon.

Love to you both, Katie xx

[pear-shaped]

Thank you Katie, I do hope you are called soon... They recommend you treat unsuccessful ones as trial runs..

Atleast yours and mine have made it to the list... Met so many today who have not and will not be offered as they have so many other issues going on...

I guess it strengthens us for the next call....

Again, i do hope you get called soon.

Pear

[Jmears in reply to pear-shaped]

Sorry to hear that. I hope you get the call soom. Wouldn't you rather have a liver that is going to last and keep your husband in good health, than one that is not in as goober condition as it could be. I have been waiting for 5 years just to get on the list. So I know how you feel.

Wackie Jacqui

[Bolly]

Stay strong Pear. Cant imagine the stress of starting to hope and then that hope being taken away again. So traumatic, especially as someone else has to die in the right circumstance, in the right place and at the right time before your hubby can start to live again. Fingers crossed for you.

[pear-shaped]

The waiting is excruciating for those waiting for a donor liver or waiting to be put on the list... Its such a terrible state to be in...

The situation of having to wait for someone to die in order for you or your partner to live is in itself a huge predicament to be in...

I always take a moment to pray for the one who has died as well as his/her family... Yesterday, I was joined by the nurse and a fellow patients partner...

Pear.

[bestiebabe]

I know only too well what you are feeling, we went through 10hours of waiting to see if the liver I needed would be suitable. Like yourselves we were sent home,. Devastated I began to think that I wasn't destined to receive my transplant. I had a different outcome because 3 days later I received THE call and in January I had my transplant.Just keep believing.... there will be a liver that is exactly what your body needs. I will keep everything crossed that you receive the wonderful gift of life

[pear-shaped]

Thank you

[steven11]

Hi Pear, my wife has had 2 such disappointments in the last week so empathise totally. To add to a gruelling emotional time, she was rushed in today with an infection, possibly HE. We just have to keep positive and I know that thinking of the donor and their loved one's makes it so difficult to justify your hope with their grief. I'm sure feeling their grief makes us understand the true value of their ultimate gift. Good luck.

[pear-shaped]

I do look at life from a completely different angle now... I do hope that your wife gets the right treatment and care. Simple illnesses like infections can become a complicated maze... I do hope that she gets better soon... My husband has HE and is taking refaximin.

keep us posted...