A walk from the hospital back home - Bridge to 10K

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A walk from the hospital back home

9 Replies

Hiya,

Today I had my 4-weekly IV against my rheumatic arthritis. Despite the fact I sit there with a tube in my vein getting something nasty in my body to suppress my immune system, I actually like those hours. You often see the same people again and the nurses are very kind. A fellow patient said it well today, we are like a kind of family. We are always chatting, despite not knowing each other. And today was not different.

I was talking to a man of 71 or 72 who used to be a teacher. We talked about lots of things, but one moment my tiredness came up. He currently does not have it, but he said that rheumatic tiredness is very real and cannot be compared with other kinds of tiredness. As I knew already, the trick is to listen to your body and balance your physical acts without resigning yourself to the couch. And he agrees that it is hard to come to terms with the fact that you are 41 and can't do whatever you want anymore. While I think of my walk of 9K on Sunday as short and feel desilusioned because I was so tired afterwards I needed a nap, he thinks of 9K as long and a heavy exertion. So it comes to the same again, I really have to learn to come to terms with my 'handicap'.

Anyhow, my dad had dropped me off at the hospital and I walked back home after the treatment. A calm walk of 3,85 km which frustratingly passed a fair and I had to resist all the tasty sugary things they were baking. I almost literally drooled 😂. Deep fried doughnut balls, churros and ice cream, a true cholesterol hell. But I resisted and walked passed them.

It was a good walk, fast (for me) according to Garmin, but slow according to my feeling. I truly enjoyed it. Might walk home after every treatment.

Cheers, Evy

9 Replies
nowster profile image
nowsterGraduate10

Have I pointed you at this before about "Spoon Theory" by the lady who came up with the concept?

butyoudontlooksick.com/arti...

in reply tonowster

I got the link on the RA group here. It is indeed a good way to explain to others how it is to be you. Many don't understand. A colleague said I just need to exercise more because exercise give energy. Eh...

Irishprincess profile image
IrishprincessGraduate10 in reply tonowster

This is very moving but brilliantly explained. Thanks for posting.

Doris8 profile image
Doris8Graduate10

Well done Evy on your walk back from hospital, . I was in the same situation with chemo infusions and herceptin infusions. Used to walk back from hospital or do my exercise bike for exercise in morning, even before radiotherapy at hospital. I was determined it wasn’t going to get me down. I found I had more energy. I know my situation is different from yours , Take care

in reply toDoris8

Ow chemo infusions, that is indeed different from mine. Yours is / was heavier I think! Well done that you kept going with your exercise!

Doris8 profile image
Doris8Graduate10

Thanks but all clear now. You’re doing well anyway 👍

Irishprincess profile image
IrishprincessGraduate10

I love the smell of doughnuts but I don’t eat them as I find them too stodgy but I can imagine what those smells were like 🙂 just tempting you….

Well done on the walk and on resisting the temptations 😇

in reply toIrishprincess

They are not doughnuts as in those round things with a hole in it. I don't know if they are really known in England? Here is a picture of how they look. They get deep fried and them sprinkled with icing sugar. They are delicious!!

dough balls
Irishprincess profile image
IrishprincessGraduate10 in reply to

Not sure if they have them or similar here. I walk past these stalls. Now, if there was a cheese stall……😋

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