Hi I am a new member. I was diagnosed with breast cancer (DCIS) right side 20cm after a regular NHS scan. I had 3 biopsies but only 1 was malignant and that was removed by excision with clear margins in May. It was 35cm ( so I was very lucky )! I am 13 days into radiotherapy with 2 to go and so far I have not experienced any bad side effects. I am working full time and have carried on as normal.
I used the camellia oil ( Fushi?) from a few days before the treatment started and only once a day at night. The skin is slightly pink but that is all. The hospital were not keen on me using this at the start of my treatment as it had not been tested by them.( they recommend E45 which is full of chemicals). They now agree that this oil seems to be very good! I would recommend it as it is entirely natural.
I have also taken up yoga which I find very helpful .
I also wondered if anyone had managed to avoid tablets after radiotherapy or if this is always prescribed? I do have an appointment with my consultant at the end of next week but can't find much information about this.
Good luck to everyone going through this.
Jo
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jo_howes
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I assume your cancer is ER+ if you are talking about tablets?
I had mastectomy rather then lumpectomy as I wanted to avoid the radiotherapy and side effects from that, but of course it was a personal choice, my lump was 25mm after first told was 17mm, they don't know for sure until they remove it really do they!
I am on letrozole and have been for 2 years, if your cancer is ER+ you will need something to lower your bodies estrogen, as that is what was fuelling your cancer cells, if you are premenopausal then they will give you tamoxifen , none of us want to take medication but the results long term taking reduce the cancer returning by a lot, it really is needed.
Hi, although my experience of DCIS is back in 2008, I was not prescribed any tablets following my radiotherapy. At that time at least it was not automatic. X
Hi Jo, l didnt have any side effects either..l used aloe vera gel and kept it in the fridge. As mine was triple neg l didnt have any medication afterwards. A vegitarian since my teens on diagnosis l went dairy free.. got through chemo with as little medication as possible.. was lucky enough not to need the dexametadrone steroids, but if your cancer is hormone positive you will have to take whatever tablets they prescribe to stop your body producing the hormones that have been feeding your tumour.
Thanks everyone. I don't think I have been told if it is ER positive but I will check. I have been having periods for 42 years and no signs of menopause so I am guessing it may well be! I also had IVF treatment several times ( I have 3 IVF kids ) so have certainly been subjected to plenty of oestrogen. Interestingly, my surgeon is also looking into connections between DCIS and cervical cancer ( I had a cone biopsy in my 20's). I will get some aloe Vera gel for once the "burn" develops- I have a slightly pink line above the area so it may be on its way! Thanks for the advice😀 Last treatment on Monday. YAY!
Can you please let me know where I can buy this oil as I will also be going through radio therapy, would really like to use the oil. Please let me know how you used the oil
I bought it from Ocado but I checked and you can buy it from amazon. It is fushi organic camellia oil. I've also got some aloe Vera 100% pure as recommended on this site for the burn. It's incredibly mild at the moment (14 treatments in) but I am ready in case it gets worse. Good luck with your treatment.
After radiotherapy 18 years ago I used fresh aloe from a plant I bought for the purpose. Was brilliant at calming sore skin. I still have the offspring of that plant in my house today. I have just had a mastectomy after finding DCIS in that breast ( last time lobular invasive grade 2) .
I am aware of speculation that treatment for breast cancer such as radiotherapy and tamoxifen may contribute to risk factors for cancers some 20 years later. Has anyone else come across this? My oncologist noted anecdotal evidence for this. Does not mean to say one should not treat the cancer one has with all that is relevant but something to weigh up when making decisions. Expect each cancer and each individual is different.
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