I am really scared: I have anorexia and... - Bone Health and O...

Bone Health and Osteoporosis UK

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I am really scared

wecanhelpeachother profile image

I have anorexia and a recent DEXA showed -2.5.

I am 44 years old. I know I need estrogen to help bones. Do you think I'm too old to stand a chance of generating my own estrogen? I haven't had a period in several decades but maybe if I put enough weight on there's a chance.

Currently I'm not on medicine for this. I was on HRT but I'm worried because I also get migraines - I have asked to see the GP for a review.

There aren't many posts from premenopausal people on this board, or people with anorexia, so if anyone wants to say hi...? :-)

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wecanhelpeachother
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10 Replies
28Harvey28 profile image
28Harvey28

Hi. So sorry to hear how you must be feeling. I'm afraid don't have the knowledge to comment on whether you are able to produce estogen. If you haven't already there is a wealth of information on the ROS website about nutrition and exercise to help bone health and the ROS specialist nurse are really helpful. Also there are supplements you can take alongside this to improve bone health. It is scary but please try not to put too much pressure on yourself and keep talking. Wishing you all the best and hope you get some answers

Bertiepuss profile image
Bertiepuss

Hi, I'm perimenopausal and age 46. I started HRT at age 44 as I started with symptoms although was still having periods. I don't have anorexia but had bulimia for about 15 years until the age of 30. I spoke with one of the nurses on the help line the ROS runs after my first DEXA showed osteopenia. They were really helpful guiding me though. Also great videos on the ROS website. Good you are seeing your GP but don't panic, take your time to learn about all your options. You don't need to jump in at medications if you don't feel they are right at this current moment. There are a lot of lifestyle measures you can put in place to help your bones. I spent about 6 months researching and learning and asking questions on here which helped me calm down and be less alarmed. I was very worried at first and terrified I was going to suddenly break bones. I am much more relaxed now. The positive thing is you've found out early so you can start to look after your bones. Many are shocked when they have their first DEXA at 65 and had no idea their bones were already well into osteoporosis. We both have time on our side so consider this scan as a positive early warning that will set us up for a slower decline because we already know where we are starting from. Read my past posts, I got lots of info that helped me.

Fruitandnutcase profile image
Fruitandnutcase in reply toBertiepuss

Good advice from Bertipuss and the ROS.

Hope you don’t mind that I don’t fit the criteria you are looking for but my friend’s son who lives in NZ and who was in his early forties was told he had osteoporosis and I was absolutely horrified for him - it was just after I had been diagnosed - I was 71 at that time.

I felt terribly upset for him having it so young but I have since found out from a reliable source that as Bertipuss says, when you are younger you have time on your side to work on your bones, diet and exercise.

I remember the boy from when he was a child his diet was very, very poor not sure if he was anorexic but he was a really skinny delicate looking boy who didn’t eat much.

A few years on photos of him show that he has filled out and looks really healthy, he started going to a gym, does a lot of weight bearing exercise, he has a big dog that needs a lot of walking and I gather he now eats good nourishing food and veg so he was lucky to find out what he did, at a time he could act on it.

I would say, don’t panic, take your time, read as much as you can about the condition, make a plan of action and don’t be rushed into anything and remember you are still the same person you were before you were diagnosed.

ROSModerator profile image
ROSModeratorPartner

Hi wecanhelpeachother ,

We just wanted to wish you a very warm welcome to our community :) It's really understandable to feel anxious at this time, so we hope that you can continue to connect with our wonderful members here.

We also wanted to mention that we have some information about anorexia and bone health on our website: theros.org.uk/information-a...

We really hope you find the support you're looking for here at this really difficult time.

Wishing you the very best,

Lulu

ROS Moderator

skinnykangal profile image
skinnykangal

Hello, sorry to hear about your condition. Life can be complex sometimes! It sounds like you've been dealing with difficult issues for sometime. Please don't give up. I agree with the other contributor that the ROS should be your best port of call for advice, especially given your medical situation.

You could also try some weight-bearing exercise. Perhaps some light yoga or lifting light weights? And what about supplements? Do you take Calcium, vitamin D3 and vitamin K2? I take them as capsules but if you had difficulty with that you might look around to see if they are available in liquid form.

I have been working on reversing OP with a combination of diet, exercise and the above mentioned supplements. I don't take any other medication. So far, so good. You may be able to search out my other posts. Pleade contact me again if you would like further information.

Chin up!

Best wishes.

Feline4 profile image
Feline4

Hi, I have several spinal fractures and a spinal T score of -5.9. In my case the osteoporosis is self inflicted after 45+ years of anorexia. Pleased to say I now eat well and take much better care of myself but it's much too late. Living with daily pain and mobility issues isn't fun. I don't feel sorry for myself and take full responsibility for my condition. I urge you to do everything you can to eat a good diet and your nurture your emotional wellbeing. As others here have said, do speak with the ROS nurses and look through all the marvellous resources on the website. You're not alone and there is help out there. Good luck my friend.

BlueWilbur profile image
BlueWilbur in reply toFeline4

Do not blame yourself for anorexia.

I echo what others have said re advice

Thank you so much everyone for your kindness and support!It's so good to know that there are others out there who understand.

I'm currently struggling with undiagnosed leg pain for 5 weeks now which has me housebound (good old NHS is dragging its feet and sending me all round the houses but I'm yet to receive any sort of diagnosis or explanation). I suspect stress fracture but won't know until I get an MRI.

I'm trying to eat more but as every anorectic knows, eating more is even more hellish when you're unable to even walk around.

Thanks again for all the kind messages and ideas for info.

Xxxxxx

Never underestimate the power of good food, exercise, vitamins/minerals...I am a long recovered anorexic...you said you are still in that state...so getting your hormones back will be more difficult if you can't feed your body what it needs to recover. Your body will not "do extra work" until it has all the protein it needs for the 300+ jobs in the body. Protein and fat are absolutely necessary and essential for the human body to thrive. I also found that animal protein was by far the best for me, it's more bioavailable, and you have eat 3x as much protein from plants to get the same benefit, I simply cannot eat that much food. My hormones came back after a year of "over" feeding with protein, which was my only food goal...so you are 44...you have time, I started meno at 51, moved directly to BHRT. Best decision.

wecanhelpeachother profile image
wecanhelpeachother in reply toSoutherngirl2787

thank you so much :-) this is helpful. I completely believe you about animal protein. I've been vegetarian/vegan but despite what 'they say' in the media about plant based being the best, I just sort of instinctively feel like i need animal fat and protein (no offence to any veggie/vegans as I think everyone's body is different and manages in different ways to an extent) - I just need to get used to it. It's so frustrating at the moment I would love to go to the supermarket and choose something but I can't move my leg at all. Congratulations too on your recovery :-)

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