Raloxifine

[cmoc]

Has anybody taken Raloxifine. How did you get on with it? I have had it a month and taking every second day right now as I am med sensitive. Was OK until a week ago when feeling sick in mornings then a 5 hour attack of nausea and vomiting. And now, back to nausea each day, stomach growling and burping and cant eat much. Also have very heavy legs and feel really tired all the time.

I started a Botox for migraine treatment at the same time, a month ago and I am confused whether the symptoms are from Botox or Raloxifine, has anybody else had experience with the Raloxifine, did side effects go away. I dont want to stop it as I havent managed to tolerate anything else. Thanks

[Joey2013]

Hi I too am med intolerant and have been on Raloxofene for over a year.I have been fine on it and not experienced any noticeable side effects at all. Sorry you're still struggling but stick with it, Im on it daily and no problems. It may be the botox?

[cmoc in reply to Joey2013]

Thankyou. Yes, it may well be the botox, that should wear off in 2 month if I am lucky LOL

Did your bone density stay stable on it?

[Joey2013 in reply to cmoc]

Not sure yet, DEXA planned in 18months but certainly no more spontaneous fractures which is a relief.

[Deb967]

I was on Raloxifene for 9 yrs. Only side effects I had was Excessive sweating. A soaking sweat all the time.

[cmoc in reply to Deb967]

Thankyou. That would be fine, I can put up with some sweating. I am always hot or cold anyway LOL Did you keep stable on it?

[Deb967 in reply to cmoc]

Yes I did.

[Nuthatch]

I’ve been on it for a couple of years after finishing Terrosa. No side effects other than I’m now getting chilblains in cold weather. Not sure if it’s related though. No idea if it’s doing anything as the bone clinic seems to have no further interest.. had a REMS scan 2 years ago and may have another this year if I can afford it. I’m losing height so not sure if I’ve had further fractures but I admit I do all sorts of things I probably shouldn’t!

[cmoc in reply to Nuthatch]

Thanks for the reply. I have peripheral neuropathy in my feet so wouldnt know the difference I guess LOL Sorry the Bone clinic isnt interested. Are you in the UK, I am looking to get a REMS scan in September this year. Yes, I am a lot shorter than I was, much to the amusement of my husband!