Teraparatide shortage

[Blondeisbest]

Hi all, I was due to start teriparatide injections middle of January, I have now been informed that because of a shortage of supplies the drugs will now come from Italy! Not sure how I feel about this and whether I should be concerned, anyone else had the same issue?

[Craftycreator]

Hi coincidentally although my course has finished I was still getting all the information re shortage from my provider. As far as I understand it the Teriparatide is just in packaging that was intended for Italy. There is no difference in the formulation etc, Everything should be exactly the same. Most important is you receiving the medication.

I wish you all the best. Happy New Year.

[Blondeisbest in reply to Craftycreator]

Hi, that's not how my letter reads ......."the product is considered licensed in uk'.......' has same formulation as uk'......but still says there are differences between Italian & uk product information, was already concerned about taking these drugs now even worse , thankyou for your reply.

[Jemima48 in reply to Blondeisbest]

I've had a letter saying I'll now only get one pack of teriparatide delivered each time rather than two, as they are spreading them out. So they now have to make double the deliveries! No mention of Italy.It is a bit worrying, but we should probably be grateful as you do hear of people simply being unable to get hold of their prescribed meds. And, unlike denosumab, it's not dangerous to come off teriparatide suddenly, should the worst happen.

[Blondeisbest in reply to Jemima48]

All a bit unsettling but have to do what we think best and hope for the best.....I sound so negative but I'm actually not 🤭 here's to a happy healthy new year.

[Jemima48 in reply to Blondeisbest]

You don't sound negative at all! It's a worry to be on any sort of medication, let alone when things don't go smoothly. I must say, I have found the deliveries brilliant, totally reliable. I've twice been worried about not getting it on time before going away, have emailed and had an early slot arranged the next day! So hope that's reassuring.

Happy - and healthy - new year to you, too 😀

[Blondeisbest in reply to Jemima48]

Thankyou it is reassuring.....I'm sure there are more good accounts than bad .

[Rhubarbtr]

it has been licensed for the UK and is the same formulation. I wouldn’t worry if I were you, Italy is a major European country with robust regulations governing pharmaceuticals, this would not concern me at all. The risk of a disabling fracture would….

[Blondeisbest in reply to Rhubarbtr]

Thankyou my head tells me it's all ok but the daft gremlin tells me maybe not! 😅

[Rhubarbtr]

we all have that gremlin…. The chances of a serious side effect with a pharmaceutical treatment are low. The chances of a fracture are high….. the only thing we can do is follow the statistics. There are no guarantees whatever we do, we just have to make the most rational decision based on the info available.

[powerwalk]

Slightly on a different note, do you get this directly from the company or is it sent to your pharmacy for you? May need to consider it in few months so just wondering what wat its worked. Thanks

[Blondeisbest in reply to powerwalk]

From what I understand it gets delivered to pharmacy then to me....a community nurse will show me how to administer.....that should be fun🫣.

[powerwalk in reply to Blondeisbest]

Ah right. Hope all goes ok. Tk you.

[Craftypainter in reply to Blondeisbest]

It's really easy and the needles are so thin you hardly notice x

[Blondeisbest in reply to Craftypainter]

Think I'm squeamish rather than scared, but will have to be a big girl and get on with it....thankyou.

[Sunseaandsand]

Hi, when medications and treatments are in short supply in the UK they are made available to us from the European countries.

I have had many different medications come to me in this way from Germany, Italy, France and Greece.

There is absolutely no need to have concerns surrounding your treatment coming from another country.

It is like asking, should the Italian people be concerned about taking any meds that are sent from the UK.

The most important thing is that you are going to receive your treatment quickly, this could I hope prevent you having fractures x

[Blondeisbest in reply to Sunseaandsand]

Thankyou, I'm glad all my concerns seem unfounded , I have to be realistic as I don't want any more fractures ,am well at the moment and need to stay that way.

[lgd333]

I was supposed to start Teriparatide but told of the shortage too. I've been sent details of the Teriparatide Teva pen. They told me I'll wait till February.

[Blondeisbest in reply to lgd333]

I was supposed to get my first delivery in the middle of January, was told about shortage but not if there would be a delay, so not sure at moment.

[Polkadot62]

I was due to have my regular quarterly infusion of Ibandronate next week and received notification about 2 weeks ago to say appointment cancelled until further notice due to "manufacturing supply issues". Is this becoming a wider issue I wonder...

[Blondeisbest in reply to Polkadot62]

I must say it is a bit unsettling, maybe something to do with brexit ? Not really sure, not sure if mine has been delayed ,only manufacturing change but only time will tell....keeping us on our toes😅.