no to prolia

[Radars]

after reading a lot of the videos regarding prolia I will not be taking it,it is taking me a lot of time wether to have my second reclast infusion on the 25th of this month, a lot of these so called specialists are not sure how long to stay on these drugs before they cause problems.

[MDP1950]

I was advised that I would be given three annual infusions, followed by a drugs ‘holiday’ for 3 years, then a scan to check progress and review medication.

That seems to me a plan by my ‘so called specialist’!

[Deb967 in reply to MDP1950]

I want something like that but I’m going to see if I can get a lower dose of Reclast.

[VieuxQuebec]

I have been on Prolia for 6 years, no side effects.

[Radars in reply to VieuxQuebec]

that is good you don't read many good stories, I am going for my 2nd reclast infusion on the 25th dreading it,ended up in a/e peeing blood at 4am the next morning, you must have been weary about having it after all the horror stories ruining people's lives.

[VieuxQuebec]

I was leery at first; now am leery of stopping it lol! I have not read too many stories about it ruining people's lives. As I said, no SE at all. I just wish I could self inject it at home; it is allowed in other countries but not in the US; ridiculous as it is a subcutaneous injection like insulin. I wish you well for your next infusion-4/25 is my birthday so it's a special day and I hope that means good results for you.

[Radars in reply to VieuxQuebec]

thanks, yeah you could just pinch your stomach and inject easy,have you been on reclast before prolia, how is prolia thought of in the US:,have you had any fractures since been on prolia. when you finish prolia just make sure you go straight onto something else don't go cold turkey.

[VieuxQuebec in reply to Radars]

I fractured my wrist - I fell on the sidewalk right onto my left wrist in 2021. Before Prolia I took oral meds, then Forteo injections daily for 2 years. Yes, I will not go cold turkey-my rheumatologist assures me that it is okay to continue on Prolia. We will see... What country do you live in? I chose the name VieuxQuebec because I love Quebec City though I live in NYC--wish I was in Quebec right now!

[Radars in reply to VieuxQuebec]

in the uk, you are doing ok with prolia a lot of people really suffer with side effects, was your osteoporosis severe.

[Greekolives]

I took Prolia for several years without any side effects. It helped my hip, but not my spine. So, I had to give myself daily injections of Forteo for two years. That really helped to rebuild bone. I had severe osteoporosis at that point. I am grateful that the Forteo worked for me. My osteoporosis is no longer severe, but I still need to take Alendronic Acid so I don't lose the bone I have gained. I tried the natural route, but it didn't improve my bone density sadly.

[Radars in reply to Greekolives]

you are one of the few who have coped well with prolia did you have to take any extra calcium because it lowers calcium levels, I am dodgy about doing it, because if you Google it there are a lot of horror stories.

[Greekolives in reply to Radars]

Yes, I take Calcium Hydroxyapatite which was recommended by my chiropractor. It comes from the bones of grass fed beef, and is absorbed better than other kinds of calcium. I take Vitamin K2 with it which puts the calcium into the bones instead of the arteries. My friend is a hospital pharmacist and he said if I didn't start treating my severe osteoporosis, I would start breaking bones. I did break my wrist. He said that once someone fractures a hip, he has seen these patients go downhill fast. People seem to die faster after that. I have seen this happen myself with someone I know. So, a person has to decide if they want to risk breaking a bone, or facing possible side effects. In my opinion, I had to do something, as I enjoy spending time being active with my grandchildren. I think you hear about horror stories because people who have had no problems with a medication don't tend to write reviews. It's the people who have had problems that write them. I am happy with my decision to take treatment because I tripped on a tree root on a trail, fell hard, but only hurt my knee. I didn't break any bones, so that tells me it's working. I use to think like you do about side effects, but I realized it was more risky to not get treatment, than to get treatment. And, thankfully I have had no side effects from it.

[Lisannn]

I hear you. I am told by spine surgery specialists that my osteoporosis condition is so severe, (11 vertebral fractures over a 3 years last in September ‘23) that unless I get pharmaceutical intervention I’m a walking time bomb at high risk for hip and other fractures. All three surgeons refuse to touch me and I need spine surgery to be able to stand erect and walk suit or even lie down without intense pain.