Zolendronic infusion : I've now been... - Bone Health and O...

Bone Health and Osteoporosis UK

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Zolendronic infusion

5 years ago•5 Replies

I've now been diagnosed with osteoporosis on top of my Parkinson's. I'm on Madopar for it and now have an appointment through for an iv Zilendronic infusion at the end of this month. I already have joint pain and tremors so am worried if this will make it worse. My doctor just said to stop worrying! Ive also been on Letrazole for breast cancer for 5 years and believe this to be the cause of my other illnesses. I refused the infusion two years ago but have now been urged to have it. Any advice welcomed. Thanks in advance.

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tiredandsad

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Madopar

5 Replies

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5 years ago

Oh how awful, I also blame breast cancer for most of my ailments, I was on Anastrazole, just finished the 5 year course last year (2019).

Also recently completed my 3rd and final Zoledronic infusions. I just had a few days of achy hips and thighs. Maximum was 5 days then they stopped. I'm on a drug holiday now. Wishing you well. 😊

• in reply to5 years ago

Ps, drink plenty of water before, during and after your infusion. XXX

Kaarina5 years ago

If it is any help, my neighbour has Parkinsons (quite badly now) and has had the yearly infusion twice now and says she has had no side effects from it.

Goldencbc5 years ago

I also have Parkinson’s and the infusions were recommended for me when I was just diagnosed with Osteoporosis 3 months ago. I live with a lot of hip and leg pain and decided against the infusions after reading reviews. If my scores don’t improve with my efforts supported on this site, I may change my mind. I am hopeful seeing some of the responses to you. Good luck with whatever you decide. Parkinson’s is a lot to deal with and remain positive. My spine numbers on the Dexa scan were fine. My hip was on the borderline. I might have made a different decision with different numbers.

5 years ago

I was diagnosed with osteoporosis 4 years ago and am due to have my first Zolendronic acid infusion on Thursday. I am also a Carer for my husband who has had Parkinson’s for 20 years now so I know how difficult Parkinson’s is to deal with. Good luck and wishing you well.