Just did a DEXA although different machine. Reading has improved in FOUR months (with loads of interventions including one shot of Prolia which I will discontinue) from average -3.2 (worst reading -3.7) to -1.7 (worst reading -2.2) in spine!! I will discontinue Prolia and continue everything else
Magnesium spray
Vit A through apricots unsulphered
Sesame or Tahini
Vit k2 mkt7 from Natto
Probiotics
Omega 3
AlgaeCal
Vit d (mostly from sun)
Exercise
And and and
I’m in shock and will go back to same machine to confirm but it can’t be THAT off
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Busymommy
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I have to admit though I find it so hard to believe there is such a reversal.
I do not mean to sound negative but if this is true then I want some!!
When will your next Scan be??
It will be interesting to know what your results will be.
A couple of points are that people have found a good increase when having treatment with Prolia (I like you have only had one injection and will not be having more) although how long they were on the treatment is something I do not know.
The other point is I see you have included bone broth in your diet.
Can I please ask how often you include it, as I have read that this is The way forward.
I have tried this myself but would love to find a more palatable recipie.
So am going to get a DEXA six months after first skipped dosage which would have been in October so a Dexa in April to confirm.
Because one scary doctor really told me off for wanting to go off meds. But that was a day before my scan and she almost scared me into submission. However I want to rule out Prolia’s role in my improvement.
I myself have an appointment next week and know for sure they will be trying to frighten me to stay on it,but my mind is made up and no amount of pressure will change it!
Good luck and we will all want to know what happens from your next scan.
that is amazing! My dr keeps calling me about the Prolia shot and - i feel - trying to scare me with my results which I have posted previously... I had thought about getting another DEXA scan with a different provider, but then i guess I would be in the same boat with using different machines over the past years...
I have to share everything I took. I’ve missed a few things. And AlgaeCal I started only two weeks ago so don’t give it too much credit. Let me find a moment at home to jot down everything.
Magnesium I used spray and used externally and massaged in religiously once a day.
K2 MKT7 from Natto was from a healthstore. The dark brown glass bottle brand that’s very popular. I’ll take a pic and post as I can’t post pics here.
I’m overwhelmed and a bit skeptical but will post my whole progress from 2008 for u all to judge.
But be very carefull with stopping Prolia - consult your doctor, second opinion etc. Im not a doctor but i have been reading a lot and consulted few of them (Similar situation to yours - big jump after first Prolia shot).
By stopping Prolia without taking any other medication you may loose most of the gain you achieved.
They say there are no reports of multiple vertebral fractures due to stopping Prolia after one shot. But your gain is very unusual and it might put you at risk.
I do not mean to sound skeptical. Just be cardfull and double-check with your doctors.
I’ve been reading several studies and the average change in BMD after first injection is not significant in any. At the most the outlier is at 3 percent.
Please give any references of such studies. Thanks
In fact another study from Mass Gen hospital tried to increase BMD results by giving two drugs Prolia and Forteo and were very pleased w results which after one year were all under 10 percent.
“We found that giving both of these drugs together increased bone mineral density more than treatment with just one drug and more than has been reported for any currently available therapy for postmenopausal osteoporosis," says Benjamin Leder, MD, of the MGH Endocrine Unit, corresponding author of the Lancet report. "This is particularly important since previous attempts to combine teriparatide with bisphosphonate drugs like Fosamax did not show any additional improvement."
They enrolled 100 postmenopausal women determined to be at high fracture risk, based on their bone density and other risk factors, who were randomly divided into three groups.
Over the 12-month study period, one group received a subcutaneous 60 mg dose of denosumab every six months, another group self-administered daily 20-microgram injections of teriparatide, and the third received both drugs at the same dosage schedules. ...
Participants receiving treatment with both drugs had significantly better results than those receiving just one at several measured sites. For example, bone density measured at the lumbar spine increased 6.2 percent with teriparatide alone and 5.5 percent with denosumab, but combination treatment resulted in a 9.1 percent increase. Similar bone density improvements were seen at the hip.”
Your gain is very unusual for sure. What I'm trying to say is that having such an exceptional gain put you at unknown zone, because there are no similar cases.
So you changed your diet and exercise routine, got tested, found no change, went back to normal, then took Prolia, then got tested, and found a ten percent increase in bone density?
What were the dietary changes?
Btw I highly recommend “the healthy bones” by Laura and Helen Kelly because it identified exactly what nutrients from which foods.
I contineud with the diet and exercise routine while taking Prolia.
A proper amount of calcium and magnesium in food, vitamines d3 and k2. Fast walking at least an hour every day, 2-3 times a week weights. I'm 52, with vertebral fractures.
I decided to continue with Prolia till gaining enough bone density, then stop with it using the procedure suggested in the article which i brought above.
I also think if you were just in Prolia and had a ten percent hike then that’s completely unexpected and very impressive. How old are you?
In my case I know the impact of several nutrients could have been compounded - possibly even with Prolia, because there is never one thing alone that can make such a difference. Not even a single drug because that drug would be off the shelves selling so fast.
I had 1st dexa scan 2 years ago. Bad t scores. Had one a week ago and scores improved. unbelievable as only been taking medication for 6 months. Had to have scan on different machine as moved house. I do not believe result. Osteoporosis society says you can have a dexa scan at same hospital in 2 different machines and get different results. How can you know if medication is working if you can't rely on scans.
Good point. The machine that showed improvement is the same machine I did a dexa on in 2015 which showed osteoporosis then also. Improvement since then too. But yes. Apples to oranges with the four month comparison.
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What to take to discontinue Prolia safely and for how long?
Bone density improvement 
Five years on Prolia Zero side effects plus started two more years additional.
Anyone tried Prolia (Denosumab)
Maybe the answer is to not start denosumab?
