Prolia and its effects : After recieving my... - Bone Health

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Prolia and its effects

Mjbd
Mjbd
21 Replies

After recieving my first injection I have gone downhill. Had another rib fracture on 2_22 19. Weakness, fatigue. Stomach problems. Depressed. Is this the injection or just the decease.

Dino

21 Replies
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Mjbd

Need knowledge of the disease.

Dino

Reply
Kaarina

Hi Mjbd,

Sounds like the injection has made you feel like you do. I am sorry to hear this. If you are in the UK why not give the ROS a call on their helpline. Sounds as if you need to have a chat with someone knowledgeable about OP and the the nurses on the helpline certainly are. Call 0808 800 0035 - free from all UK landlines, mobiles. A problem shared is a problem halved. Let us know how you go on.

Reply
Mjbd
Mjbd
in reply to Kaarina

Karina

I have a total now of 9 fracture ribs 4 compressed disc fractures. Hard for me to stand upright . All the mri's and cat scans show cancer . Md says begine. Radiologic says cancer. I am at lost.

Dino

Reply
Mjbd
Mjbd
in reply to Kaarina

Thank you so much

Reply
poemsgalore1

Osteoporosis doesn't give you any ill effects, unless you fracture . Visit theros.org.uk to find out more

Reply
Kaarina
Reply
Kaarina

Do you live in the UK. Dino?

Reply
Mjbd

No I live in us Kentucky

Hope u are doing ok

Dino

Reply
Mjbd

Thank you

Reply
Allie2013
Allie2013
in reply to Mjbd

I took Prolia for three years. I now have 10 vertebral compression fractures, but I didn’t get them until going off Prolia. I live in Tennessee.

Reply
Mjbd
Mjbd
in reply to Allie2013

My ribs are breaking. 9

4 compressed discs fractures 4 begin cancers in my body. My spine turns cold when I eat. Lost 40 lbs since october.legs give out. Speech slured memory bad. Fatigue, weakness. All my doctors can come up with is osteroperies. Can this disease affect you in this way. Gave me injection of prolia now worse. Creepy crawling feeling in arms and chest. I am at lost

Thank you

Dino.

Reply
Badsideeffects
Badsideeffects
in reply to Mjbd

I have Exp with Prolia. It destroys your life. Amgen knows it and so does the FDA. Yet they will do nothing about it you take it off the market. Stop getting the sharks it's the devil is. Check my other postings if they haven't taken them down. Which they love to do because I guess they love the FDA. Do you want to go downhill and end up bed ridden. Start with the Prolia Shots. I am in constant pain in my spine in my tailbone. Unfortunately I took the second shot and then finally stopped after my GP told me that everybody complains about awful back pain.

1 like
Reply
gary1977

This problem (early vertebral or pelvic fractures after discontinuation of Prolia)

seems to be the dirty little problem that Amgen was aware of well before the black box warnings came into effect. In the meantime countless sufferers are sustaining unexplainable fractures of the vertebrae, and in my case my sacrum as well.

The drop in bone density (after Prolia discontiuation) with out switching to an alternative modality is well understood and has been for some time. I was never warned of this 1.5 years ago, and as a result am suffering the consequences. When I started Prolia, no warning was given. I would like to poll this group to get some idea of those affected in different locals...i.e Canada/England/U.S./other.

I believe there is a strong case for a class action suit where there were no warnings from the manufacturer or those Doctors prescribing for big pharma.

1 like
Reply
Mjbd
Mjbd
in reply to Allie2013

I keep getting worse. Did not take my second injection of prolia

Reply
Jumpey

I have no knowledge of this drug. But I wanted to send you loving thoughts and wishes that you will find out what is wrong and can get some proper help. Hang on in there.xx

1 like
Reply
Mjbd
Mjbd
in reply to Jumpey

Thank you so much

Dino

1 like
Reply
Mjbd
Mjbd
in reply to Jumpey

Thank you do much

Reply
Mjbd
Mjbd
in reply to Jumpey

Thank you

Reply
gary1977

This problem (early vertebral or pelvic fractures after discontinuation of Prolia)

seems to be the dirty little problem that Amgen was aware of well before the black box warnings came into effect. In the meantime countless sufferers are sustaining unexplainable fractures of the vertebrae, and in my case my sacrum as well.

The drop in bone density (after Prolia discontiuation) with out switching to an alternative modality is well understood and has been for some time. I was never warned of this 1.5 years ago, and as a result am suffering the consequences. When I started Prolia, no warning was given. I would like to poll this group to get some idea of those affected in different locals...i.e Canada/England/U.S./other.

I believe there is a strong case for a class action suit where there were no warnings from the manufacturer or those Doctors prescribing for big pharma.

Reply
HeronNS
HeronNS
in reply to gary1977

This point has come up several times in the last two or three months. Others have said no legal firm is interested in taking this up yet, but I can't believe with what is now known that a class action suit wouldn't be well worth their while. The question is - how to gather a large enough group of complainants to stat the ball rolling. I know that there was a successful suit in Canada against the makers of Fosamax so this sort of thing is not without precedent.

1 like
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HeronNS
HeronNS
in reply to HeronNS
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