Osteoporosis : I have just joined and... - Bone Health and O...

Bone Health and Osteoporosis UK

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Osteoporosis

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6 years ago•8 Replies

I have just joined and am interested in experiences of anyone who has been on Prolia treatment for osteoporosis. I have been advised to begin 60mg Prolia injections every 6 months. I did 3 Reclast infusions that were completed 3 yrs ago. I’m leaning to not do it based on what I’ve read anout side effects.

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8 Replies

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Kaarina6 years ago

Hi maymaw

It sounds like you have already made your mind up that you will not start the prolia injections. You also appear to have left this community and de -activated your HU account as your username is now Hidden.

Posy-White6 years ago

Hello Hidden Are you still able to access this site - Very happy to share thoughts if your still able to read replies. Posy White

sweetsusie6 years ago

You're right to be very wary of these bone meds. The side effects are horrific! I would never take them! Have your doctor put you on HRT (Hormone replace therapy) instead.

Fracturegirl6 years ago

I took two injections of Prolia in 2016. One in June and one in December. I had bad bad aching in my arms and legs starting after the first shot. It got worse after the second shot so I refused the next shot which would have been due in June 2017. I wasn’t warned about the rebound fractures so I decided to not take Reclast at that time. Wish I had been warned because beginning in October 2017 I have had seven vertebrae fractures with the last one just three weeks ago. The fractures are supposed to stop after a year but mine have not. I despise Prolia and the manufacturer Amgen. I didn’t even have osteoporosis when I started the Prolia. I had Osteopenia. Now I have the back structure of a 90 year old. I’m taking K2-7 and lots of D and calcium and trying to walk a little every day.

sweetsusie• in reply toFracturegirl6 years ago

I am so sorry that you are having fractures, but not surprised. I wish ALL women (and men!!) would refuse to takes these awful bone meds. If more people would refuse them, we could get them off the market, or at least make these drugs 'flagged!"

Jayge• in reply toFracturegirl6 years ago

When you decided to stop, were you not told abound starting something else because of possible rebound fractures?

Viazoy6 years ago

Prolia basically ended my active life as I knew it. Because of a short delay of a few weeks (occasioned by a change in doctors at my clinic) I had three fractures a year ago and have been largely disabled and in a lot of pain ever since. Besides, Prolia has interfered with getting needed dental work done. I deeply regret ever going near that drug!

angryandfrustrated6 years ago

You better have perfect teeth. Any tooth extraction is a serious risk of Osteonecrosis of the jaw, which I currently have after 2 injections and having a tooth crack and need to be removed. I'm in a mess! Reclast also has that risk. I fear them all.

Good luck

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