I really need some help because I feel like I am not getting the best advice from my doc. I’m mid 50s, female, post menopause. A year ago I spontaneously broke 2 ribs, followed by a compression fracture in my spine. Mayo primary doc put me on Fosamax. After 2 months, pain in upper leg was increasing and felt it was spreading across groin. Also felt dizzy, constipation, difficulty swallowing, etc. I stopped taking it. Pain ceased in a couple weeks and eventually my throat returned to normal. I increased exercise, stayed on calcium/vitamin D supplements and did not want to take Prolia. Felt it would be just as bad as Fosamax. Now a year later, my rheumatologist has convinced me that I should be on Prolia to prevent my next fracture such as a hip. My life has changed. I was an extremely active hiker and golfer. I can do a little “gentle” hiking but I can no longer golf. Very afraid that if I fall I will break something. The rheumatologist has said he has many patients on Prolia with no side effects and this would benefit me. He is somewhat dismissive when I mention anything I’ve read such as reversing any gains to bone density when you stop or side effects. I’ve read some information recently that you have to take another bone density drug if and when you stop prolia. He never mentioned that and that troubles me. I am feeling lost between what I’m researching and what I’m being advised by my doctors. Any advice from those who have had similar experiences would be helpful.
Would you need to be on a bone density med the rest of your life and, if not, would you just go back to square one? Has anyone successfully increased their bone density through calcium/vitamin D supplements and exercise alone? Has anyone been on Fosamax and had to switch to Prolia and was it better?
Thank you for your help!