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prolia

6 years ago•6 Replies

i am new here my oncology, pcp is telling me to stop taking Prolia i have been on it for more then 3 years but my OB doc is giving me and she has my history that my other doctors don't have they only see my current bone density that has improved a lot from my first bone scan. I talked to my OB she said go to prolia website for information. I looked at the website but all the information i get it people not happy with it. So I am confused.

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encore02

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Prolia

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Kaarina6 years ago

Hi encore02, welcome to the forum. It is great to hear that you presumably had no side effects taking Prolia for three years and your bone density has improved immensely since your first bone scan.

The only thing i would mention is that my endocrinologist whom I see twice a year for my OP did say that if discontinuing prolia after three years or so there is the possibility of Rebound Vertebral Fractures and it is best, if discontinuing with Prolia to immediately start on another OP drug or decide to continue with Prolia for a few more years if your doctor/you both agree. ncbi.nlm.nih.gov/pubmed/282...

By the way, I decided not to take Prolia because one possible side effect is joint pain and i suffer enough with that daily as I was diagnosed with osteoarthritis many years before osteoporosis. I was not prepared to take that chance and the endocrinologist was fine with my decision.

encore02• in reply toKaarina6 years ago

thank you

Kaarina• in reply toencore026 years ago

I noticed the link I copied and pasted did not work so have tried again. Hopefully this time it is OK.

sweetsusie6 years ago

I'm 70 years old and my doctor put me on HRT. It will take a while for my bones to improve (I, too, have osteoporosis), but I will not take those other meds. Tried them...no thanks. I know most doctors freak out about putting women on hormone replacement therapy if they're through the menopause, but I found one kind soul who I convinced to put me on them. This is my 3rd month and I've never felt better in my life! Yes..there are risks, just like with any other meds...I'll take my chances with the HRT. Those bone meds can cause terrible side effects, including jaw fractures and thigh bones breaking for no other reason than the bone drugs...just my humble opinion.

HeronNS6 years ago

Prolia has turned out to be a disappointment. The bone density increases quite effectively, so doctors were quite happy to tell their patients they were safe to discontinue it. Unfortunately it is now evident that many patients will then go on to develop rebound osteoporosis, hence it's very important to continue to treat the bones either by remaining on Prolia, basically for life, or by switching to another bone medication which will counteract the rebound effects. I am sure with proper consultation your various doctors will be able to advise you on the best course but it would be wise for you to go into the discussion with lots of information. If you google rebound osteoporosis prolia you will find a number of research papers dealing with the topic.

encore02• in reply toHeronNS6 years ago

thank you

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