Hi everyone. Just an update on my recovery from my accident on May 12th. I'm 65 and I broke my hip, my leg, my collar bone and had a head Injury. I was in a pretty bad situation as the breaks were extremely bad ones. I really thought I would die as I lay screaming on the floor. Breaking a hip is said to be one of the worst pains ever, and it is. My spine collapsed 4 years ago and this pain is more than comparable to that if not worse in the immediate sense. I didn't think I would ever walk again at first. I was in hospital for a couple of weeks and the repair job was fantastic. I have a pin inside the femur from the knee up and another right across the hip attached with hinges to give me movement. I was in rehab for about 4 weeks, which is an absolute must. I have been home for about a month now. My hip has healed but my leg which has broken in the middle and downward towards the knee and the top bit which had nearly sheared off, has not healed at all. I'm on steroids as I have a autoimmune disease, and that is a problem for the healing process. However, I am getting on really well. I can walk with my stick and can go up and down stairs. So everyone out there it's not the end. It's a hideous experience, but with great aftercare you can get back to your normal life. My autoimmune disease is the bigger nuisance. I'm on forsteo and that has built my bone strength in most areas, but not in the right hip which is the one I broke. I have 2 more months on it. I am then going on a different injection given twice a year. Good luck everyone.
Janh: Hi everyone. Just an update on my... - Bone Health and O...
Janh
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Thank you for the update - I recall the horrendous incident you described and the tremendous spirit you showed in coping with it.
Best wishes for the remainder of your recovery - may it be straightforward and as rapid as practical.
Thank you very much. I'm amazed that it has healed as well as it has, considering the damage. I've now bought new sandals with backs on. I haven't been able to throw the other ones out yet as I love them, but I will do. My husband was very worried about me,but as soon as I said that I had ordered some new sandals and clothes online, he cheered up and said thank god, I know you're feeling better. Seeing the funny side of things is what keeps us going.There are days when it's not so easy, but it doesn't normally last very long . I get fed up with being miserable,if I'm tired or exhausted, I'll lay down and and rest. I never think that we should ignore what our bodies are telling us. My autoimmune disease lets me know whether it's nanites are winning or mine are, or that we have met in the middle.
There is no big black sack of pain or misery to carry, I look at it as coexisting with all the diseases that are in the autoimmune one.
I thank god that I have a wonderful husband and have managed to keep going to see our latest grandchild born and another one on the way.
Take care and best wishes Janh.
Hi Janh, I'm sorry to hear you had an accident. I'm new to Op only having been diagnosed a few weeks. But it's great to hear your positivity. All I can feel at the moment is a cloud of darkness. It's really got me down - worries me no end about what is safe to do what isn't etc. Well done for being to strong. Hopefully I will get thrrr one day! At the moment I don't feel strong about it at all. X
It's all new and scary. It's a learning curve but it is so important to take control. Learn everything you can. If you're not happy with any of the Drs ask to be referred to someone else. Do try and go to your local national osteoporosis meetings as they will help you cope with the diagnosis. It's not the end. I promise. Before you knew you had it , I expect you were living your life and doing things you enjoy. Carry on , but just be mindful of anything you've been told to avoid. Don't carry too much now. Get all the paperwork from the national osteoporosis society. You can speak to a nurse there, so that would be very helpful to you.
Good luck Janh xxx
Hi Jan
Great to hear from you and a positive posting - I am sure this makes a great difference with any recovery. I presume you will be going on Prolia when the Forsteo time is up? Do call in from time to time, we like to hear from you. Look after yourself, and may you go from strength to strength. 
Hi there, I'm going on Denosumab/ Prolia injections for 2years, which are given twice a year. There is concern as I'm so allergic to everything, hence the frequent long stays in hospital in the past which saved my life many times. I'm always nervous about new drugs but if I don't have this, all the Forster injections will have been wasted.
There are new drugs coming out next year according to Stanmore, but that is too far down the line for me at the moment. I had to go there as my consultant wanted a second opinion. They thought I should wait , but my consultants at Luton say that's not an option as I'm so bad in my bone health. I'll start those in November in hospital so they can monitor me. Wish me luck. Janh xxx
It is scary when you hear the word Osteoporosis and it is you they're talking about. Because I have so many other things wrong with me, my bone health was not monitored as it should have been, especially so because I'm on high steroids. As I was very ill with the autoimmune disease, I had other things to deal with. There will be local osteoporosis meetings in your area, and it's really worth going as you can talk and learn tips and being with others that understand what it's like having to deal with it, is comforting.
You need to learn all you can about it, and research what medications might be helpful to you. Depending the stage your osteoporosis is at, will warrant which meds are best for you. Write down any questions you have, to take with you when you see a consultant.
It's not the end of the world, I promise you. I'm about as bad as it gets, I also have a collapsed spine. I was bedridden for nearly a year and it took another year for me to accept my condition and get on with my life. My husband is just about a saint. I insist on doing as much as I can myself, because when I am in hospital, I notice that people get lazy. They get others to do things that they are perfectly capable of doing. Do as much as you can yourself, but you mustn't over do things. Take charge of your condition whatever it may be, you are your best hope to keep on top of it. Love and best wishes Janxx
When you have other conditions, you really do have to go, oh ok, worry about it for a couple of hours and then think, well, I had it yesterday and didn't know and I was ok. Then forget about it and get on with everything. I have about 25-30 different diseases within my autoimmune disease. I can't worry about all those. I deal with whatever is on the upper at any given moment. There are only a few people with it and it's named after me as I was the first presenting case. I'd rather have a rose or handbag named after me haha, but my consultant insisted. I wanted it named after him as he's done all the work on it. But he refused. It's so much easier now it has a name, as before I'd have to give all the symptoms again and again, and again........, and of course the Drs didn't have any idea. Xxx
Best wishes and good luck
Goodness! What a lot you have on your plate! I found my fractures hard enough on their own but so many people I come across on here and other online groups are coping with all kinds of other issues, many of which are at the root of their osteoporosis. I guess that makes me lucky, although I didn't feel lucky at all when it happened!
I wish you well with your recovery. You obviously have a very positive attitude and, while that can't mend bone on its own, I'm convinced it makes a difference. I've read that people with depression are more likely to suffer with osteoporosis, so it makes sense to me that people who are the reverse are helping themselves in some way!
Like you, I have a very supportive husband and would have found the past two years very, very challenging without him. We have had a difficult time, as while I was recovering both his parents died - also our 43 year old son became very ill and was in hospital for some weeks. It turned out that he had long term undiagnosed Functional B12 deficiency and developed transverse myelitis as a result. He has had to come home to live with us, as he lost his job, income, and flat. His recovery is still ongoing. So poor Bob has had 2 invalids to cope with as well as a full time job!
Hopefully this will be the year where things really start to improve for us all
Oh goodness, everything happens to us as well. Just as one thing gets sorted another problem rears up. I hope things get better for you. When it's our children who are ill, it's so much more of a worry. My eldest son 39 had a mild stroke last year and that was a huge worry. He's able to work again but it has left him weaker than before. I'm sure you worry about your husband. Mine worries in case he's ill and can't look after me. He had a prostate scare in 2015 and now takes tablets and has regular checks. I'd rather I was ill and not my family. I'm glad it's me with this disease and not them. Best wishes janh xxx
Glad you are on the mend wishing you all the best
Thank you. I hope you are feeling well today. I have had my best friend down from Suffolk whilst my husband and son met up and went to Goodwood classic car show together. They had a wonderful time which was lovely. I like it when he can do things like that. It gives him time to enjoy himself. Even if I was more able, it's not for me. We went shopping (very slowly). So I hope you and everyone out there are able to do something you like today. Janh xxxx
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