Hi. I was diagnosed w/ HCC 2 1/2 months ago. I have been on immunotherapy for 6 weeks. So far, I have experienced: tumor fever every night. Pain which had gotten severe last month. I am starting to lose my appetite as foods don't seem to taste good anymore.
Can anyone who has been fighting this longer let me know the possible future course.
This is Wayne. I have communicated with you before. Can you tell us more about your cancer. Such as size, single or multiple lesions, portal vein thrombosis, metastasis and previous treatment. This may help understand where you are.
Sure Wayne, Thanks. I think initially had 4 tumors - 7cm, 7cm, 3cm and 3 cm. (Supposed to have first updated (3 month CT scan) in 3 weeks to get current status. No portal vein thrombosis. No prior treatment. RE: metastasis, not sure if I heve solid clarity. (Can't tell if they mean metastasis within the liver (microfocal) or possibly to the Loco regional lymph nodes; not sure what this means either. Obviously, still learning.
Rollo, Thanks for sharing your information. First, from what you said. Has a transplant been discussed. Second, your symptoms are not uncommon during treatment. I was told tumor fever was caused by dying tumor cells which sounded positive. Best wishes on everything and prayers.
Hi, Wayne. I was told the tumor in the liver was multifocal. They are also looking at a few lymph nodes. I'm supposed to have my first follow-up CT in 3 weeks and heard this was pretty important. I have been told by all initial doctors I saw that I was not a surgical candidate.
Hi Wayne. I'm not sure how many tumors or the size. Was told areas seen which are potentially metastatic. No biopsy done. Dr currently focused on medication. At my next visit in 3 weeks supposed to get CT scan. I will ask about these, at that appointment.