Hello, it's me again. Yesterday I was given details of my lung condition. It's called Nonspecific interstitial pneumonitis. The consultant put a form of Pulmonary Fibrosis after it. I started on steroids yesterday.
I've searched for information and come across lots of very frightening stories and I'm confused (nothing new) When I search 'pneumonia' keeps coming up and not pneumonitis.
I went to the see the GP 18 months ago about a cough! Eventually, 6 months later I saw a respiratory consultant who told me I had late onset asthma! The next consultant, after seeing CT scan, blood tests and lung function tests said 'lungs clear' see you in 6 months.
I was still coughing so saw a private consultant three weeks ago. More tests! My GP's surgery didn't send on my blood test results so another ten days delay in being diagnosed!
My only symptom is my cough plus I've been told my gas exchange is slightly low. Blood gas 99%. I'm very active and I don't get breathless so I'm very, very thankful for that.
I can't get my head round the fact that it's taken 18 months to make the diagnosis!
Does anyone else have this?